Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
For My Birthday, My Husband Gave Me a Scale – A Year Later, I Gave Him the Ultimate Revenge Gift
For my 35th birthday, my husband handed me a beautifully wrapped box and a smug grin. Inside was a gift that shattered my confidence and lit a fire in me. A year later, I delivered a surprise of my own, one that left him begging for forgiveness.
The house buzzed with laughter and chatter. Balloons in soft pastels floated near the ceiling, and a “Happy Birthday” banner stretched across the living room. Plates of snacks and cake slices sat on every table.
A table set for a formal dinner | Source: Pexels
My kids ran around, giggling, their faces sticky with frosting. Friends and family filled the room, glasses clinking in celebration.
“Okay, okay! Everyone quiet!” my husband, Greg, called out, raising his phone. He grinned as he started recording. “The birthday girl is about to open her gift!”
I smiled nervously, my heart pounding. Greg wasn’t usually one for surprises, so this had to be something special.
A woman smiling during her birthday dinner | Source: Midjourney
He handed me a box wrapped in glittery paper. “Go on, babe,” he said, giving me an encouraging nod.
“What is it?” I asked, holding the box carefully. It wasn’t very heavy, but it had some weight to it.
“Open it and find out!” Greg said, still filming.
I tore at the paper, revealing a sleek black box. I opened it, my smile freezing as I stared inside. A digital bathroom scale gleamed up at me.
A bathroom scale | Source: Pexels
“Wow,” I said, forcing a laugh. “A weighing scale?”
“Yes!” Greg exclaimed, laughing loudly. “No more ‘big-boned’ excuses, babe. Just figures!”
The room went quiet, save for a few nervous chuckles. My cheeks burned. I glanced around at the guests, who avoided eye contact. I did put on a lot of weight while carrying our third baby and didn’t have any time to lose it while breastfeeding and managing the house.
A sad woman at a formal dinner table | Source: Midjourney
“Thanks,” I said, swallowing the lump in my throat. “This is… thoughtful.”
Greg clapped his hands. “I knew you’d love it!” he said, oblivious to my discomfort.
That night, after the guests left, I lay in bed staring at the ceiling. Silent tears rolled down my cheeks as my husband snored beside me, oblivious.
I thought back to his laughter and the way everyone had looked at me. The shame was unbearable.
A sleepless woman in bed | Source: Midjourney
But then another feeling rose—anger.
“This isn’t how it ends,” I said aloud, wiping my tears. “I’ll show him. He’ll regret this.”
The next morning, I laced up my old sneakers. “Just a walk,” I told myself. “One mile. You can manage that.”
A woman in athletic wear | Source: Freepik
The air was crisp as I stepped outside. My muscles ached from lack of use, and my feet protested with every step. As I trudged along the sidewalk, I caught a glimpse of my reflection in a store window. My heart sank.
“This is pointless,” I thought, slowing down. “What difference can one walk make?”
A woman standing on a street | Source: Midjourney
But then, I remembered Greg’s laugh and those cruel words. My hands clenched into fists. “One walk is a start,” I told myself firmly. “Just keep going.”
I came home sweaty and exhausted, but a tiny spark of pride warmed me. The next day, I did it again. And the day after that.
A woman exercising by the water | Source: Freepik
I began swapping my sugary morning coffee for green tea. At first, it tasted like warm grass, but I stuck with it. Instead of chips, I snacked on apple slices. It wasn’t easy. The kids’ snacks called to me from the pantry, and the temptation to quit nagged at me.
One night, as I stared at the chocolate bar Greg had left on the counter, I whispered, “No. This isn’t who I want to be anymore.” I grabbed a handful of almonds instead.
A woman stretching her hand out to grab a chocolate bar | Source: Midjourney
Two months in, I was walking two miles a day. My pace quickened, and my breath no longer came in ragged gasps. My scale showed that I’d lost seven pounds. It wasn’t much, but it was something.
I decided to try yoga. A YouTube video promised “gentle stretches for beginners,” but 10 minutes in, I was sweating buckets and cursing the instructor’s calm voice. Still, I kept at it, laughing at myself when I toppled over during tree pose.
A woman in a yoga class | Source: Freepik
“Mom, you look funny!” my youngest giggled, pointing at me.
“Thanks, sweetheart,” I said with a grin. “I feel funny, too.”
As the weeks passed, my body grew stronger. I noticed my clothes fitting better. A friend I hadn’t seen in months stopped me at the grocery store.
“Wow, you look amazing!” she said, her eyes wide. “What’s your secret?”
“Just taking care of myself,” I replied, feeling a glow of pride.
A woman in a grocery store | Source: Pexels
By the time my youngest started daycare, I was ready for the next step. I joined a gym and signed up for a personal trainer. The first session was brutal. I felt out of place among the sleek, fit women lifting weights with ease. But my trainer, a kind woman named Emma, encouraged me.
“Everyone starts somewhere,” she said. “You’re here, and that’s what matters.”
A fitness class | Source: Pexels
Six months in, my transformation was undeniable. The scale showed I’d lost 30 pounds, but the real victory was how I felt. I could chase my kids around without gasping for air. My arms, once soft and weak, were now strong and toned.
One afternoon, while shopping for new clothes, I caught sight of myself in the mirror. For the first time in years, I smiled at my reflection. “You did this,” I whispered. “You’re incredible.”
A woman smiling at her reflection | Source: Pexels
Strangers began complimenting me. A barista at my favorite café said, “You have such a glow about you!” My confidence soared.
That’s when I decided to take it further. I enrolled in a fitness trainer certification course. It was tough juggling classes, workouts, and motherhood, but I was determined. I wanted to help other women feel as empowered as I did.
A woman working out | Source: Pexels
The day I passed my final exam, I celebrated with my kids. “Mom’s a trainer now!” I announced, pulling them into a hug.
“You’re the strongest mom ever,” my oldest said, beaming up at me.
“No,” I said, smiling. “I’m just the happiest.”
A woman hugging her son | Source: Pexels
As I hung my certificate on the wall, I thought back to where it all began. The scale Greg had given me still sat in the bathroom, but it no longer held power over me. It was just a tool, not a measure of my worth.
My journey wasn’t over, but I had become stronger.
A laughing woman | Source: Pexels
Greg didn’t notice me at first. For months, he came home late, barely glancing in my direction as he settled into his usual spot on the couch. But then, after I lost nearly 40 pounds and started wearing clothes that hugged my toned figure, something shifted.
One evening, as I served dinner, he looked up from his phone. “You’re really looking great these days, babe,” he said, a sly grin spreading across his face.
A man working in his living room | Source: Pexels
“Thanks,” I replied curtly, not bothering to meet his eyes.
Over the next few weeks, his compliments came frequently. “I always knew you had it in you,” he said one morning, watching me prepare a smoothie. “Guess my little push worked, huh?”
I froze, the blender’s hum momentarily drowning out his words. A “push”? That gift—his thoughtless, humiliating scale—wasn’t a push. It was a shove into pain and shame. I kept my face neutral and sipped my drink, but inside, I simmered.
A woman with a blender | Source: Pexels
Soon, Greg began inviting me out to dinner. “Let’s reconnect,” he suggested. He bragged about my transformation to his friends, saying, “She couldn’t have done it without me.” His words turned my stomach.
I realized his sudden attention was about control. He saw me as his accomplishment, his trophy. But I wasn’t anyone’s trophy. Not anymore.
An angry woman in a green sweater | Source: Pexels
As Greg’s birthday approached, I knew exactly what I would give him. I bought a box the same size as the one he had handed me a year ago. I even used the same glittery wrapping paper.
His birthday party was a small gathering at home, just a few friends and relatives. I set the wrapped box on the table and smiled sweetly. “Here’s your gift, Greg. I hope you like it.”
A man receiving a gift box | Source: Pexels
His face lit up as he tore into the wrapping paper. When he lifted the lid and saw the crisp stack of divorce papers, his smile vanished.
“What…what is this?” he stammered, his hands trembling.
“Figures, babe,” I said calmly. “No more ‘married excuses.’ I filed for divorce.”
The room fell silent. Greg’s face turned pale, and then bright red. He stood, knocking his chair back. “You’re joking, right? This is a joke!”
A shocked man in a red polo | Source: Pexels
“No joke,” I replied, standing tall. “You made me feel small, Greg. You didn’t believe in me, but I believed in myself. And now, I’m done.”
He dropped to his knees, his voice pleading. “Please, don’t do this! I didn’t mean to hurt you. It was all a misunderstanding. You’re amazing now—all thanks to me!”
I shook my head, my voice steady. “No, Greg. It’s thanks to me. I’m stronger than you ever gave me credit for.”
An angry woman with her hands crossed | Source: Freepik
I grabbed my gym bag, my heart lighter than it had been in years. I walked past the stunned faces of the guests, out the door, and into the crisp evening air.
That week, I moved into my new apartment, filled with light and warmth.
For the first time in years, I felt free. And that was the greatest gift of all.
A smiling woman in an orchard | Source: Pexels
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