Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Unleash Your Inner Child at the Theme Park!
Although theme parks are typically thought of as places for kids, adults may also have a great time and make priceless memories there. Allow me to tell you a touching tale about a father and daughter who had a very unique experience with Disney World’s magic.
While Dan and his daughter Lyla, six, were strolling through the park, they happened upon a piano and a gifted musician. Lyla declared with pride that her father could also play the instrument as they listened to the music. They had no idea that this innocuous comment would set off an incredible performance.
Music teacher Justin acknowledged that while singing was not his strongest instrument, playing the piano was. Motivated by Lyla and the pianist, Justin assumed the spotlight and initiated an unplanned performance. He held the attention of everyone in the vicinity with the melancholic chords of “Ave Maria.” People were so drawn to his voice that they stopped in their tracks. Flashing cameras recorded this amazing moment. Justin would never forget that day.
Lyla was ecstatic beyond measure. “He sang it out loud and almost everyone took a video of him,” she proudly told local media. Lauren, Justin’s wife, was also astounded by the compelling production her husband created. The audience erupted in deafening ovation at the grand finale, expressing gratitude for this surprise performance.
Justin had no idea that this spontaneous act would make him a household name on the internet. His enthralling performance was captured on camera, which went viral and received thousands of views and favorable comments from people all around the world. Though Justin never anticipated becoming famous, he loved being well-known.
As he considered his newfound fame, Justin modestly told a local newspaper, “It’s beyond what I ever could have dreamed.” For grownups like Justin, Disney World—which is renowned for its enchanted experiences—proved to be equally captivating.
Thus, don’t be afraid to embrace the unexpected and let your inner child go the next time you visit a theme park. One never knows, perhaps you’ll make lifelong memories. Talk about this endearing tale with your loved ones. Love and tranquility are, after all, meant to be shared.
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