Those nine months a mom carries her baby are filled with joy, anticipation, and a dose of uncertainty. What the new parents hope for is their bundle of joy to be healthy. Sadly, that is not always the case.
Jennie Wilklow, from Highland, New York, couldn’t wait to meet her daughter. She and her husband were over the moon to hold her in their arms. All the ultrasounds and doctor’s appointment suggested the baby was healthy, so they were eased and never thought sweet Anna would be born with a condition that would change all of their lives forever.
Jennie delivered Anna via C-section at 34 weeks. Doctors told her she looked beautiful and that was all Jennie needed to hear at that point.
Shortly after, the proud mom heard her daughter cry, and that was just another sign that everything was right with her little jewel.
When her husband visited Jennie, he was strangely silent and looked worried and puzzled.
“My husband’s silence scared me; he just sat in shock as the doctor left, and I prodded for more info,” Jennie shared with Cafe Mom.
“He just kept saying, ‘It’s bad.’ What does that even mean? I thought in my head. He told me, ‘Jennie, I looked in her eyes, and she has the most beautiful soul.’”
Anna was diagnosed with harlequin ichthyosis, a rare condition that causes thick diamond-shaped plates that are separated by deep cracks. “As they tried frantically to help her, her skin hardened within seconds (of birth). After hardening, it began to split, causing open wounds all over her body,” Jennie told Cafe Mom.
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Although doctors weren’t sure she would survive, Anna beat the odds and is thriving. “She was beauty in the purest form,” her mom said.
There isn’t cure, and the treatment is quite demanding as it requires constant baths and keeping the skin as much moisturized as possible. “Every couple of hours I covered her with Vaseline and bathed her for many hours of the day. I had dreamed for years about the things my baby would wear, and though it seemed so trivial, it was what I struggled with most,” Jennie said.
In an attempt to raise awareness about this condition, Jennie posts photos of Anna on her Instagram page harlequindiva. She opens up about the everyday struggles and what it is like to have a child with harlequin ichthyosis.
“Anna captured everyone’s hearts because she is the purest form of perfection. Doing the work every day is simple when I’m doing it for her, and with every new accomplishment, the world celebrates with me,” Jennie told Cafe Mom.
She adds, “I now understand that I was given her because of the love I already carried in my heart for my daughter. Anna was meant for me, and I for her, and together we will show the world what true beauty is.”
Beloved Sports Reporter’s 2-Year-Old Daughter Has Passed Away Following Valiant Battle With Leukemia
Hallie Kyed was diagnosed with acute myeloid leukemia in April 2023, nine months ago, at the age of two. Sadly, Hallie lost her life on January 21 at the age of 2, as her father, Doug Kyed, an NFL reporter for the Boston Herald, revealed on Instagram.
Kyed claims that after his daughter experienced a relapse after receiving a bone marrow transplant, things took a turn for the worst. Her chemo had run its course.
Doug writes, “On Sunday morning, Hallie passed away peacefully in her sleep while Jen and I held her hands in bed.” “Without Hallie, we’re sad and totally lost. Never again will our lives be the same.
Doug went on to say that his young daughter “was a special kid.” Furthermore, “she made a positive impact on so many people she met,” even at the age of two.
Olivia was blessed to have the greatest baby sister, and we were fortunate to be her parents.
The family “spent special time at the hospital last week, but we held out hope for remission because of how brave, strong, and resilient Hallie had been through her entire nine-month battle with acute myeloid leukemia and all of its complications,” the reporter said, adding that they “knew the prognosis was poor when she relapsed after her bone marrow transplant.”
However, despite Hallie’s bravery and fortitude in the face of such adversity, “her aggressive form of leukemia had grown out of control by the time she started a trial treatment, and chemotherapy after transplant was ineffective.”
Doug gave Boston Children’s Hospital’s physicians high marks for their efforts because “they did everything they could to help Hallie, and she beat AML every day for over nine months straight.” After her successful transplant in October, or even when she was first diagnosed in April, nothing could have possibly prepared us for this moment.
Hallie would shout “DADDDDYYY” at him, requesting that he “take her on a walk around the hospital floor.” The bereaved father revealed that Hallie would also give him “sweet little pats on the back when I took her out of her crib.”
Hal, my koala baby, my tiny Hallie Bear, my Sour Patch Kid… was incredibly gorgeous, hilarious by nature (and knew it), and destined to be a dancing class star. The medical personnel, doctors, and nurses enjoyed guessing which princess attire she would be sporting that day (or at that certain hour).
Doug also hopes that those who are grieving for his daughter will learn one thing from her: “to know exactly what you want and to be persistent in asking for it, whether it’s going on a walk, riding in the car, or wearing one particular Disney dress (usually Cruella).” Despite the fact that “the world is a worse place without Hallie in it,” he hopes.
I will miss giving her a head kiss, petting her hair, and telling her how much I adore her. Hallie indefinitely.
On January 26, Hallie will be laid to rest. The Kyed family is in our thoughts and prayers during this especially trying time.
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