Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
Mom of rare twins with Down syndrome shuts down critics with photo showing how beautiful they are
While the chances of giving birth to twins increased 72 percent between 1980 and 2018, it’s still pretty rare. About 33 out of every 1,000 births are twins.
And what are the chances of identical twins? Approximately every three or four births out of every 1,000 are identical twins. So again, relatively rare.
When 23-year-old Savannah Combs found out she was pregnant with twins, she was thrilled. And then she learned another rarity, they both had Down syndrome.
Of course, it was emotional news. Savannah and her husband, Justin Ackerman, knew that some people would judge her and her babies because of their condition.
But to Savannah, that’s what makes them incredibly precious.
“It’s very rare what they have, but they’ve been my little gems,” she told News4JAX.
Savannah, who is from Middleburg, Florida, shared her post-pregnancy journey with her daughters Kennadi Rue and Mckenli Ackerman, on TikTok where they quickly gained a following.
In one of her videos, Savannah said she was told to abort her babies because they would not make it.
She decided to keep them and give them a fighting chance.
”Every [prenatal] appointment they were alive was a blessing to me,” Savannah explained.
When she learned they both had Down syndrome, her husband was away at boot camp.
Savannah was 29 weeks pregnant when she was admitted to the hospital, and delivered her daughters. The identical twin girls, Kennadi Rue and Mckenli Ackerman, were born on May 12, 2021.
The twins arrived two months before their due date, so they had to spend several weeks in the NICU before they came home.
They’re called mono di twins, meaning that they had their own sacs, but they shared the same placenta, meaning that they were going to be identical,” she said.
“Mo di twins as it is, it’s like very rare. And then you throw Down syndrome on top of it, it’s like one in 2 million.”
Despite their rare condition, Savannah said they are just like any other child.
“They have feelings. They have a beating heart. They know how to talk. They know how to do things you do. They will get there,” she said.
“Like I said, it may be a step behind but they’re going to do it. I’ve learned these kids are feisty little things and happy little things.”
Leave a Reply