Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
My son and his wife shamed me for wearing red lipstick. I decided to teach them a lesson
The Spark: A Family Dinner Gone Wrong
Edith had always been a vibrant woman, a beacon of confidence and style, even at 75. Her red lipstick was her signature, a mark of her vivacious personality. But that evening, as she prepared for a family dinner, she had no idea that her choice of makeup would ignite a firestorm.
As she carefully applied her favorite shade of red, she felt a sense of nostalgia and pride. This lipstick had seen her through countless milestones, from job interviews to romantic dates with her late husband. It was more than just makeup; it was a symbol of her enduring spirit.
Her son arrived early, catching Edith in the act. With a sneer, he commented, “Mom, you look like a desperate old clown trying to cling to your youth. It’s embarrassing.”
The words hit her like a slap. She paused, the lipstick trembling in her hand. Before she could respond, her daughter-in-law, with a smug smile, chimed in, “Oh, I agree. Red lipstick is not for older people. I think you should stick to what other people are doing.”
Edith’s heart pounded in her chest. The audacity of their remarks left her momentarily speechless. But then, a surge of defiance surged through her. “Honey, why don’t you mind your own business,” she snapped, her voice steady and cold.
Her daughter-in-law looked taken aback, her confidence momentarily shattered. “Sorry, Edith, we just don’t want you to look like a clown,” she muttered, clearly unprepared for Edith’s retaliation.
Her son, trying to regain control of the situation, added with a smirk, “Okay, Mom, enjoy the circus.” His wife let out another laugh, and they both walked away, leaving Edith in a storm of emotions.
From Hurt to Rage: The Turning Point
For a few minutes, Edith stood there, her reflection in the mirror a painful reminder of their cruel words. She felt a deep sadness, the kind that comes from betrayal by those you love most. But as she sat in the corner, the sadness began to morph into something else: rage.
How dare they mock her? How dare they try to strip her of her dignity and individuality? She had spent her entire life building her confidence, refusing to conform to societal expectations, and now, her own family was trying to tear her down.
Edith knew she had to act. This wasn’t just about red lipstick; it was about respect and standing up for herself. She decided to give them a lesson they would never forget.
The Plan: A Week of Preparation
Over the next week, Edith meticulously planned her revenge. She reached out to a few trusted friends and even roped in her neighbor, Mrs. Jenkins, a woman of similar spirit and age. Together, they devised a scheme that was both subtle and impactful.
First, Edith decided to host a grand dinner at her house, inviting not only her son and his wife but also other family members and friends. The guest list was carefully curated to include people who respected her and those who could influence her son and his wife.
She spent days preparing, ensuring everything was perfect. She cooked her son’s favorite dishes, set the table with her finest china, and decorated the house with beautiful flowers. But the centerpiece of her plan was her appearance. On the day of the dinner, Edith wore a stunning red dress and, of course, her signature red lipstick.
The Showdown: A Lesson in Respect
As the guests arrived, Edith greeted them with warmth and grace, her red lips a bold statement of her defiance. Her son and his wife were among the last to arrive, their expressions quickly turning sour upon seeing her.
The dinner began smoothly, with lively conversations and laughter filling the room. But Edith had a surprise in store. As dessert was served, she stood up to make a toast.
“Thank you all for coming,” she began, her voice strong and clear. “I’ve always believed in living life to the fullest and embracing who you are, no matter what others think.”
She glanced at her son and his wife, who were shifting uncomfortably in their seats. “Last week, I was told that I should stop wearing my favorite red lipstick because it’s not appropriate for my age. But I believe that confidence and style know no age.”
The room fell silent, all eyes on Edith. “So tonight, I want to celebrate all of us who refuse to let society dictate how we should look or act. To those who embrace their true selves and live with confidence and grace.”
Her friends and family erupted in applause, many raising their glasses in agreement. Her son and his wife looked mortified, their earlier smugness replaced by embarrassment.
Edith smiled, her red lipstick gleaming under the chandelier. She had made her point loud and clear. Age was just a number, and no one had the right to dictate how she should live her life.
Aftermath: A Changed Dynamic
In the weeks that followed, the dynamic between Edith, her son, and his wife changed. There were no more snide comments or mocking laughs. Her son even apologized, admitting he had been out of line. His wife, too, seemed to have learned her lesson, treating Edith with newfound respect.
Edith continued to wear her red lipstick proudly, knowing that she had stood up for herself and set an example for others. She had shown that age was not a barrier to confidence and self-expression, and in doing so, she had reclaimed her dignity and respect.
Her bold stand had not only silenced her critics but also inspired others to embrace their true selves, proving that sometimes, the most powerful lessons come from the most unexpected places.
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