Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.
She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Another terrible loss for the Bryant family, sending prayers
Joe “Jellybean” Bryant, the father of the late Basketball Hall of Famer Kobe Bryant, has died at the age of 69, La Salle University’s athletics department reported.
Citing La Salle men’s head basketball coach Fran Dunphy, The Philadelphia Inquirer wrote Joe had recently suffered a stoke. The exact cause of death hasn’t been confirmed yet.
La Salle University, where Joe played and coached, said in a statement that he “was a beloved member of the Explorer family and will be dearly missed.”
Just like his famous son, Joe was a renowned basketball player himself. Drafted by the Golden State Warriors as the 14th overall pick in the 1975 NBA draft, he played for the Philadelphia 76ers for four seasons, the then-San Diego Clippers for three seasons, and the Houston Rockets for one season. He also played in Europe.
The 76ers paid tribute to Joe, calling him “a local basketball icon, whose legacy on the court transcended his journey across Bartram High School, La Salle University, and his first four NBA seasons with the 76ers from 1975-79.”
Joe’s sudden passing comes four years after the tragic death of his son Kobe and his granddaughter Gianna, who were killed in a helicopter crash with seven other people.
Kobe’s widow, Vanessa Bryant, wrote on her Instagram story on Tuesday, “Sending our condolences upon hearing the news of my father-in-law’s passing.
“We hoped things would’ve been different. Although the times we spent together were few, he was always sweet and nice to be around. Kobe loved him very much.”
Former Kobe teammate Doug Young praised Joe as the ideal “role model.”
“Joe was our JV coach at Lower Merion and I could not have asked for a more positive mentor, teacher, and role model,” Young told ESPN. “It’s difficult to overstate how much he influenced me and my teammates. He made basketball fun and made us all want to be better; he believed in us. I’ll never forget his infectious smile, his bear hugs and the incredible bond he shared with Kobe. Growing up in Lower Merion, there was no family we loved and admired more than the Bryants, and that started with Joe.”
Arn Tellem, the vice chairman of the Pistons and formerly Kobe Bryant’s agent, expressed his sadness over the loss of Joe and joined the basketball community in mourning a true Philly hoops legend. “Our friendship opened the door for me to represent Kobe as he entered the NBA, a memory I’ll always cherish. Joe was a devoted husband, father and grandfather, whose warmth touched everyone he met.”
May he rest in peace.
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