Throughout the nine months of pregnancy, a mother’s heart is filled with anticipation, excitement, and a hint of doubt. When an expecting parent gives birth, they all want the child to be healthy and happy. Regretfully, our expectations are not always met by the way things work out.
Jennie Wilklow, of Highland, New York, was looking forward to meeting her daughter. Jennie and her spouse were overcome with happiness the moment they held their baby.
After multiple ultrasounds and check-ups with the physician, the results consistently showed a healthy baby.
This assurance put their minds at rest, and they had no idea that their darling Anna would be born with a disease that would permanently alter their lives.
At 34 weeks, Jennie had a C-section to deliver Anna. She peered into Anna’s eyes when the physicians placed the baby in her arms and felt an overwhelming sense of love.
Everything was going fine with their cute little one. However, Jennie couldn’t help but feel apprehensive about her husband when he came to visit her.
Jennie told Cafe Mom, “My husband’s silence scared me.” I pressed him for additional information as the doctor was leaving the room, and he just sat there looking shocked. With remorse, he added, “It’s bad.”
Upon meeting her gaze, her spouse said, “Jennie, she has the most beautiful soul.” Jennie did not know what such terms meant at the moment. Her mind was racing, but she had no idea what was wrong.
Anna suffered from an uncommon disease known as harlequin ichthyosis, which showed up as thick, severely fractured diamond-shaped plates. Jennie said to Cafe Mom shortly after giving birth, “Her delicate skin hardened as they desperately tried to help her.”
The dramatic splitting that followed the hardening left her slathered in open wounds throughout her body.”Anna prevailed despite the physicians’ concerns about her prognosis. She was quite beautiful,” Jennie proudly declared.
Unfortunately, there is no known cure for harlequin ichthyosis. The treatment involves regular showering and thorough skin moisturization, which takes consistent effort. I used to bathe her for hours every few hours, slathering her in Vaseline.
It might not seem like much, but it was one of the things I struggled with the most. I had visualized all the amazing clothes my child would have,” Jennie said.
She set up the “harlequin diva” Instagram page and started posting images of Anna there in an effort to raise awareness of this illness. Through her articles, she sheds light on the challenges faced by parents of children with harlequin ichthyosis on a daily basis.
“Anna won many people’s hearts and is the pinnacle of perfection in its purest form.” She has a natural capacity to carry out these mundane tasks. The world celebrates with us every time we achieve a new milestone, Jennie said to Cafe Mom.She went on, “I now realize that my love for my daughter is the reason Anna was given to me.” Because we were destined to be together, we will work together to redefine what true beauty means to the world.
In addition to being beautiful in her own right, Anna is fortunate to have parents who will stop at nothing to ensure that she has a happy existence.
Let’s help spread the news about Anna’s story by inviting our friends and family to read this article on Facebook. Despite our differences, we can work together to raise awareness of and respect for the incredible beauty and power that each individual holds.
Men Singing ‘You Raise Me Up’ Will Give You Chills
A strong acapella song may enhance any type of music, whether it’s through the vocalists’ capacity to capture the listener’s interest or the absence of extraneous instruments that draw attention to the lyrics.
This is especially true of Brigham Young University’s (BYU) Vocal Point’s acapella rendition of the 2003 hit song “You Raise Me Up” by Josh Groban. They give this lively song a fresh new energy.
Students Dave Boyce and Bob Ahlander founded the acapella group BYU Vocal Point in 1991. After selling out their first performance, the foursome rose to prominence on campus.
In addition to placing fifth in the third season of NBC’s The Sing-Off, BYU Vocal Point has won other prizes since its formation.
They gained greater recognition for their talent in December 2018 when they announced on social media that they had inked a record deal with Universal Music Group’s Decca Gold, a classical label.
Member Jason Bromley remarked, “We’re just regular college students doing amazing things.”
The “You Raise Me Up” music video is an intense vocal excursion.
The “You Raise Me Up” music video is set against a stunning panorama of mountains and valleys.
A single clear voice begins the recording, then a moment later another one harmonizes with it to provide a rich, multi-layered sound.
Together with their bright, clear voices, the ensemble creates incredible vocal percussion sounds.
As they travel over the hilly terrain, the vocalists’ rendition of the song becomes more immersive.
The scenario almost devolves into an excessively calm state, illustrating the way in which music has the power to transport listeners.
Their harmonies work so effectively together that it’s difficult to determine who the lead singers are.
Instead of merely reproducing the original, they provide a remarkably fresh take on this widely covered song.
Their unique style and arrangement are incorporated into the song with a new hook at the end that enhances the harmonies. The crescendo is bolstered by an additional student chorus, making for an extraordinarily powerful conclusion.
You’re going to adore BYU Vocal Point’s incredible rendition of “You Raise Me Up.” While unwinding, take enjoy this unique and moving performance.
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