Celine Dion is giving fans an honest look at her life with stiff person syndrome.
In a new documentary, the famous singer experiences a scary medical crisis during a physical therapy session, and it’s all caught on camera.
In 2022, Dion revealed she had been diagnosed with stiff person syndrome. In the documentary, “I Am: Celine Dion,” she shares that she had been dealing with symptoms of this rare, progressive neurological disorder for 17 years.
“I need my instrument. And my instrument was not working. So we started to elevate the medicine,” Dion, 56, said after struggling to hit certain notes during her 2018 and 2019 tours.
Though she completed her 2018 tour, Dion had to postpone several dates from her 2019 tour due to the “common cold” before the pandemic shut it down.
Her tour resumed in 2022, but she had to keep canceling and rescheduling shows. It wasn’t until she announced her diagnosis that she officially canceled the rest of her appearances.
“I can’t lie anymore,” Dion says in the documentary. “From a sinus infection to an ear infection to whatever. Sometimes I would point my microphone toward the audience, and I would make them sing it. There are moments where I cheated and I tapped on the microphone like it was the microphone’s fault.”
LONDON, ENGLAND – JULY 05: Celine Dion performs live at Barclaycard Presents British Summer Time Hyde Park at Hyde Park on July 05, 2019 in London, England. (Photo by Samir Hussein/Redferns)
In the documentary, there’s a part where Dion shows a very personal moment. She’s lying on a massage table doing exercises for her physical therapy when her foot suddenly starts to cramp. Soon after, her whole body tightens up and she can’t move or talk to the people around her.
The camera keeps recording as another person from her medical team rushes in with a nasal spray called benzodiazepine. They give it to Dion, who’s in so much pain that she’s crying, even though she can’t move. It’s really hard to watch this part of the video.
Once the spasms have subsided – they typically last anywhere from 30 minutes to an hour – Dion is able to sit up and speak.
“Every time something like this happens, it makes me feel so embarrassed,” she says. “I don’t know how to express it, you know, to not have control over yourself.”
Her physical therapist speculates the attack was brought on by being “overstimulated” from an earlier singing session.
“If I can’t get stimulated by what I love, then I’m going to go on stage, and you’re going to put the pulse oximeter on me and turn me on my back?” she wonders.
Dion hopes that one day soon she’ll be able to return to the stage.
My Husband Skipped Our Baby’s Gender Reveal Appointment – It Was the Last Straw and He Deserved a Lesson
As many married couples can attest, the journey towards parenthood is one that is often envisaged as being shared equally between both partners. I held a strong conviction that my pregnancy would be a time of shared joy and responsibility with my husband. I imagined us attending each prenatal appointment together, his hand in mine, as we listened to the heartbeat of our unborn child, eagerly discussing our future with excitement and tenderness. Sadly, the reality I faced was starkly different. It became increasingly apparent that my husband was more inclined to prioritize his social life and personal interests, repeatedly sidelining our important prenatal milestones. This recurring pattern of neglect ultimately pushed me to a point where I felt compelled to teach him an unforgettable lesson.
From the moment we discovered I was pregnant, it felt as if we had stepped into a dream. For years, my husband and I had looked forward to starting a family, and now, it seemed our dreams were finally coming to fruition. The news came to us during a short romantic getaway, which felt like the universe’s way of telling us that our lives were about to change for the better. We knew that the journey ahead would be fraught with challenges, but we were ready—or so I thought—to face them together.
In the early weeks, my excitement was palpable. I approached every aspect of pregnancy with a positive spirit, even the less pleasant moments like morning sickness, because I believed that having my husband’s support would make the challenges manageable. However, his lack of involvement soon became evident. It seemed he viewed the pregnancy as my sole responsibility, an ordeal I must face alone while he maintained the freedom of our pre-parenthood days.
During the first trimester, there were nights filled with discomfort and restlessness, where the cold bathroom floor became my refuge. Meanwhile, my husband slept soundly, undisturbed and seemingly oblivious to my struggles. Even a simple gesture of fetching a glass of water seemed too much to ask of him. I found myself growing resentful, feeling abandoned in what was supposed to be our shared journey. I couldn’t help but think, “If I am already doing the job of being pregnant, the least he could do was rub my feet, or help when I am dealing with the worst nausea. I mean the child is not only his when it’s born.”
Our excitement soon soured into tension and frequent arguments. I had hoped that we would at least be able to share the experience of prenatal appointments, but my husband’s attendance was sporadic. He often opted out, preferring to engage in leisure activities with his friends. His excuses were flimsy, and whenever I expressed my disappointment, he dismissed my concerns with a shrug, saying, “I’m not the one carrying the baby, why do I have to go see the doctor with you?”
The turning point came when we were scheduled to attend an appointment to learn the gender of our baby. This was a moment I had envisioned as a milestone for us as a couple, an experience that would further bond us to our child. However, at the last minute, he decided to skip the appointment to enjoy a casual meal of fish ‘n’ chips with a friend. I was devastated and furious, but I managed to keep my composure. Instead of him, my mother accompanied me, and together, we discovered that we were expecting a daughter.
Resolved to make my husband realize the significance of his absence, I planned a poignant reminder for our gender reveal party. I commissioned a cake that was outwardly ordinary, decorated with question marks. However, hidden inside was a unique twist meant to symbolize his recent choices.
At the party, surrounded by friends and family, I asked my husband to do the honors of cutting the cake. As he sliced through the cake, out poured not the traditional blue or pink hues but miniature, edible fish ‘n’ chips. The symbolism was not lost on anyone—this was the meal he had deemed more important than attending the gender reveal of his own child. The room erupted in laughter, and while the atmosphere was light, the message hit home. It was a playful yet serious reminder of what he had missed. Taking advantage of the lighthearted mood, I expressed how crucial it is for us to support each other, especially during such a transformative phase of our lives.
Following the laughter and initial surprise, I presented the real reveal—a second cake, this one intricately decorated in soft pastel colors with delicate baby footprints. Together, we cut into it, revealing a beautiful soft pink interior. The room cheered, “It’s a girl!” The joy and excitement were overwhelming, and it was clear that the message had been received.
The realization of what he had been neglecting seemed to dawn on my husband. His apology that night was heartfelt, and from that day forward, he became a more present and involved partner. He attended every subsequent appointment without fail, and his newfound commitment to our prenatal journey was unmistakable.
As we continued to prepare for the arrival of our daughter, the atmosphere in our home shifted from one of tension to one of eager anticipation. We started planning the nursery, selecting each piece of furniture with care. My husband took particular interest in building some of the furniture himself, showcasing a level of engagement that was both surprising and heartening.
The incident with the fish ‘n’ chips cake became a legendary story within our family, a humorous but poignant reminder of the importance of being present and supportive. It served not only as a lesson for my husband but also as a reminder to both of us about the significance of shared experiences and mutual support in our marriage.
Reflecting on the journey, it became clear that the challenges we faced were not merely obstacles but opportunities for growth. They strengthened our relationship, deepening our understanding and appreciation for one another. As we awaited the arrival of our daughter, we were not just preparing to be parents but also learning to be better partners to each other. This experience, though fraught with initial misunderstandings and adjustments, ultimately enriched our bond and reinforced the foundation upon which our growing family would stand.
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