Céline Dion’s documentary, I Am: Celine Dion, has been finally released, offering a rare and candid look into her daily struggles. In one particularly vulnerable moment, Dion shares her experience of suffering a terrifying seizure that lasted several minutes.
© I Am: Celine Dion / Sony Music and co-producers
The documentary captures a tense moment as Céline Dion undergoes a medical evaluation. The Grammy-winning artist has been struggling with spasms linked to stiff person syndrome, a rare and progressive neurological disorder.
© I Am: Celine Dion / Sony Music and co-producers
Lying down on a massage table, 56-year-old Dion experiences spasms. Her doctor, Lobo, cautions that these spasms could “lead to a crisis.”
Soon after, the icon begins to experience a severe seizure. Her doctor swiftly calls for another medical team member to give her a medication used to treat nervous system disorders.
© I Am: Celine Dion / Sony Music and co-producers
At that moment, Dion can be heard groaning in pain as she shakes uncontrollably while lying face down. In a startling moment, Dion appears wide-eyed and unable to move independently.
Despite her condition, she remains conscious and manages to signal her awareness by weakly squeezing one of the medical expert’s hands.
© I Am: Celine Dion / Sony Music and co-producers
Following the administration of two doses of a nasal spray, Dion starts to recover from the seizure. The doctor mentions that if she hadn’t responded, they would have needed to rush her to the hospital.
As the My Heart Will Go On singer seems to regain her composure, she confesses to everyone in the room that experiences like these leave her feeling “so embarrassed.”
© I Am: Celine Dion / Sony Music and co-producers
Describing her horrible experience, the singer says, “I don’t know how to express it, like, it’s just … you know, like, to not have control of yourself?” Her doctor, Lobo, explains that the likely trigger for the seizure was Dion’s recent session in the studio where she had been singing, which overstimulated her brain.
Dion replied, “Well, what am I gonna do? If I can’t get stimulated by what I love, and then I’m gonna go onstage and, like, you’re gonna put the pulse oximeter on me, and you’re gonna turn me on my back?”
© I Am: Celine Dion / Sony Music and co-producers
Céline revealed her stiff person syndrome diagnosis back in December 2022. The star had to cancel tour dates in Europe, postpone her Las Vegas residency scheduled for October 2021, and later cancel her North American tour.
We admire Céline Dion’s determination and strength in the face of the formidable challenges she has encountered. Her life has been a journey fraught with difficulties from a young age, and here are seven major struggles that have shaped her into the inspirational icon she is today.
Preview photo credit I Am: Celine Dion / Sony Music and co-producers
Male nurse has absolutely no clue that he’s on camera as he decided to grant his old patient’s final ever wish
We all go through life knowing that someday we won’t be here forever. I’m not afraid of dying and see it as a natural part of life. But what does worry me is growing old and not being able to take care of myself. The idea of relying on a hospice nurse makes me a bit anxious.
The thought of needing help with everything, being unable to do simple things on my own, and forgetting my loved ones’ names scares me. It’s not the kind of life I’d want. This fear reminds me of Maria, a music teacher who was cared for by a hospice nurse in 2016.
One night, as I was leaving at the end of my shift, I said ‘Goodnight, Irene.’ Then I asked her if she knew the song ‘Goodnight, Irene,’ and I sang a little bit of it. She looked at me and smiled,” Berg said. “For someone who didn’t usually talk much with the nurses, that smile meant a lot, and I knew I had made a connection with her.”As Rosipajla’s health got worse, it was decided to move her from the hospital to hospice care. “The last time I took care of Irene, I wanted to do something kind for her and her family, so I brought my guitar,” said Berg, who had studied music in college. “I sang ‘Goodnight, Irene,’ and it was a really special moment. I was nervous about singing in front of someone, but when I started playing and singing, she was so focused, and her family was really touched.”
Michelle Naypauer, Irene Rosipajla’s daughter-in-law who saw her as a mother, was in the room and moved to tears. “Irene was a wonderful person who treated me like a daughter,” Naypauer said. “In the last few months, Irene was in and out of the hospital, and we got to know Annamarie well.”
“Before the song, Annamarie had already done some great things. Our middle son, Eric, got married in August, and Annamarie helped set up FaceTime so Mom could be at the reception bridal table. It was beautiful,” Naypauer shared.
Naypauer, who recorded Annamarie singing to Irene, wanted to capture the special moment to share with the family. “There were so many tears, and it was just so beautiful,” she said. The song was a heartfelt farewell to Irene, who passed away a few weeks later at home, surrounded by her family.
Watch Joshua sing to Maria while she was in his carehttps://www.youtube.com/watch?v=uGFRHyt1sFQ
1. “Maria is dying. Then carer takes something out of his pocket and fulfills her last wish..” Newsner. Norhan Elhakeem. October 26, 2017
2. “Nurse sings to patient moving to hospice care in touching moment.” ABC News. Haley Yamada. March 2, 2020.
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