In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
Boy didn’t stop kicking our seat during a very long Flight – Here’s what my dad did
Hi everyone, I’m Evelyn from Minnesota, and I have a story that will make you think twice before boarding a plane again. My dad and I were traveling from Alberta to Minneapolis. What started as a cozy and comfortable flight soon turned into a nightmare, all thanks to a little boy and his oblivious parents.
The Kicking Begins
About 40 minutes into our flight, a boy, probably around ten years old, started kicking my seat. At first, I thought it was a joke. I turned around and politely asked, “Hey buddy, can you please stop? I really want to enjoy my flight.” His parents shot me a weird look while the kid made a face, but I thought he got the memo.
Five minutes later, the kicking resumed, more relentless than before. This time, he was hitting both my seat and my dad’s. My dad, always the calm and composed man, politely asked the boy to stop as well. And he did… for about ten seconds. Then, it started again. Bam. Bam. Bam.
The Audacity of the Parents
My dad decided not to call the flight attendant. Instead, he reclined his seat as far as it could go. The boy, unable to kick anymore, started whining to his parents. The parents, instead of controlling their son, asked my dad to put his seat back up. “Our son should enjoy his flight too,” they insisted.
My dad politely refused. The audacity of these parents was beyond belief. They had the nerve to call the flight attendant on us. This is where things took an interesting turn.
The Flight Attendant’s Intervention
The boy’s father complained to the flight attendant, “This man put his seat back, and my son is uncomfortable!”
The flight attendant, maintaining her professional demeanor, turned to my dad. “Would you like to keep your seat reclined?” she asked.
“Yes, please,” my dad replied.
“Well then, we have no problem here,” she said, addressing the boy’s parents.
But the drama didn’t end there. The boy’s father was furious and demanded that the flight attendant make my dad put his seat up. The flight attendant explained that passengers are entitled to recline their seats if they wish. Frustrated, the boy’s father started raising his voice, causing a scene.
The Lesson
The flight attendant, seeing that the situation was escalating, called for backup. Another flight attendant and a senior crew member arrived. They listened to both sides of the story and then made a decision that shocked the boy’s parents.
“If your son cannot behave appropriately, we will have to ask you to move to different seats,” the senior crew member said firmly. “We have received multiple complaints about your son’s behavior.”
The boy’s parents, realizing they were outnumbered and outmatched, reluctantly agreed to move to the back of the plane. The boy’s father muttered something under his breath, but they gathered their belongings and moved.
As they walked past us, the boy shot us a defiant look. My dad smiled and said, “Next time, listen when someone asks you politely.” The boy’s face turned red, and he hurried after his parents.
Peace at Last
With the disruptive family relocated, the rest of the flight was peaceful. The flight attendants even checked on us a couple of times, ensuring we were comfortable. My dad and I enjoyed the rest of our journey, grateful that the situation had been handled so well.
When we landed in Minneapolis, we saw the boy and his parents again at baggage claim. They avoided eye contact with us, and I couldn’t help but feel a sense of satisfaction. My dad had taught them a valuable lesson in respect and consideration for others.
Reflection
This experience reminded me of the importance of standing up for oneself and others. My dad’s calm but firm response to the situation not only resolved the immediate problem but also set a precedent for how to handle such issues in the future. It’s a lesson I’ll carry with me for the rest of my life.
Traveling can be stressful, and we all need to be considerate of those around us. Hopefully, the boy and his parents learned that lesson too.
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