In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.
Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.
After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).
Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.
Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”
In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?
The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.
“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”
Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.
Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”
Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”
Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.
Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.
Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”
‘You’re Just a Babysitter, Not a Real Man,’ My Wife Said Before Leaving Me with Three Kids — Story of the Day
I thought I had it all—a loving wife, three amazing kids, and a life we built together. But the night I followed her to that party, everything I believed in came crashing down.
My day always started with the familiar symphony of chaos. Timmy’s sharp cries came from his crib. Kevin crashed his toy cars together on the carpet, making explosion sounds. Meanwhile, Emma stood in front of me.
“Daddy, I have to wear my pink dress today. Everyone will love it. It’s the most amazing dress ever!”
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I nodded as I tied her hair into a neat bow.
“Of course, sweetheart. Everyone will be impressed.”
The warm, sweet aroma of chocolate cookies wafted from the kitchen. My cookies were my signature, baked and ready for the kids’ lunch snack. While the oven did its job, I focused on stitching the last piece of Kevin’s dinosaur costume.
“This has to be the coolest dino ever, Dad!” Kevin said, leaning over the table to inspect my work.
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“It will be, buddy,” I reassured him. “Just you wait.”
In the background, a soft audiobook played. It wasn’t much, just something to keep the kids entertained. Those moments brought me peace. They reminded me that no matter how much life had changed, I still had something to hold on to.
But it hadn’t always been that way.
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I used to run a successful business. Long days and nights of hard work allowed Angela and me to buy this house and pay for her law school. She had dreams, big ones, and I wanted to make them come true.
When Emma was born, she asked me to stay home temporarily so she could finish her internship. I agreed, thinking it was just for a little while. Then Kevin came along, and Angela’s career took off.
“I’ll handle the house and kids,” I told her. “You focus on work.”
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Angela didn’t even take maternity leave with Kevin, rushing back to work just two months after giving birth. Promotion after promotion followed, and her time at home dwindled to nothing.
I became the one who fed the kids, read parenting books, and even baked birthday cakes. I didn’t mind. I was proud of how capable I’d become.
That afternoon, as I stitched the last seam of Kevin’s costume, Angela came home earlier than usual. She didn’t greet me or the kids. Instead, she rushed to the bedroom.
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A few minutes later, she appeared in the hallway, transformed. Her black dress hugged her figure perfectly, and her red lipstick glistened under the light. She looked stunning.
“There’s a work party tonight. I need to be there,” she said, adjusting her earrings.
“A work party?” I asked. “You didn’t mention anything. I could’ve gone with you.”
“It’s late. It’s for work. You wouldn’t enjoy it.”
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I stood there, watching her leave without a backward glance. For a moment, an idea sparked.
I grabbed the phone and dialed our neighbor, Mrs. Graham.
“Hi, could you watch the kids for a couple of hours tonight?”
With her agreement, I turned off the oven, slipped into my best shirt, and grabbed a bouquet of Angela’s favorite lilies.
“Tonight,” I murmured, “I’ll remind her of what we used to have.”
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***
The party was alive with energy when I stepped into the venue. The music pulsed through the air, and the room shimmered with expensive fabrics and sparkling jewelry. I felt a little out of place in my simple shirt and slacks, clutching a bouquet of lilies like a lovesick teenager.
As my eyes scanned the crowd, they landed on Angela. She was on stage, the center of attention. She looked breathtaking like someone who had just walked off the cover of a glossy magazine.
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I couldn’t help but feel a swell of pride as I listened to her speech. Her words flowed effortlessly, and the audience hung onto every sentence.
My wife is brilliant. My Angela. How did I get so lucky?
I adjusted my grip on the lilies, imagining her smile after getting them.
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Her speech ended with thunderous applause. But before I could step forward, another man appeared beside her. He handed her a massive bouquet of orchids, the kind I could never afford.
Then, he hugged her. The lilies nearly slipped from my hands.
Angela’s face lit up, but not with the smile she gave me. This was warm and intimate.
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The room blurred around me as I followed them through the crowd, staying just far enough behind to avoid being noticed. They stopped near the exit. I heard her voice, clear and sharp:
“Just a little longer, and we won’t have to hide. I’m filing for divorce soon.”
My legs trembled, but I forced myself to step forward. I held out the flowers silently. Angela’s eyes widened, but she didn’t say a word. Without looking back, I turned and walked away.
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***
Angela had become someone I barely recognized. The kind, ambitious woman I once adored had transformed into someone cold and cynical. Her sharp words still echoed in my mind.
“I don’t love you anymore,” she said after that evening.
“You’re nothing more than a babysitter, not a real man.”
The disdain in her eyes cut deeper than I cared to admit. She stood in the middle of the living room, listing her demands as though reading off a shopping list.
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“I’ll take the house, the car, and all the savings. I’ll leave you with the most precious thing. The kids.”
It wasn’t an act of love. Angela didn’t want them.
The divorce dragged on, a cold and transactional process. There were no heartfelt talks, no apologies. I braced myself for the worst, but in the end, the court sided with me. I was granted custody of the children and ownership of the house.
It felt like a small victory in a losing battle.
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But from that moment, everything depended on me. I had to find a job, provide for my kids, and figure out how to rebuild a life that had been shattered.
After years as a stay-at-home dad, the job market felt foreign and intimidating.
***
One morning, as I dropped Kevin off at preschool, I stood by the classroom door, watching him run to his friends. A familiar voice pulled me from my thoughts.
“Hi, Andrew.” It was Jennifer.
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She was both one of the single moms in Kevin’s class and a teacher there, someone I’d exchanged polite hellos with but didn’t know well.
“We’re looking for a teaching assistant at the preschool,” she continued. “Maybe it’s exactly what you need right now.”
Her words surprised me. Teaching assistant? I hadn’t considered anything like that.
“Do you think they’d even consider me?” I asked, doubt creeping into my voice.
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“Of course. You’re already great with the kids. Why not make it official?”
I decided to apply, and within weeks, I started working at the preschool. It wasn’t a permanent job, but it gave me enough income to cover our needs. It also came with free extracurricular activities for the kids and more time to be with them.
***
A few months later, Kevin and Emma were performing in a class play. I stood in the crowd, clapping proudly as my children took their bows.
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Then, I spotted Angela in the audience. She never attended preschool events, and her presence sent a wave of unease through me. After the performance, she approached me, her smile too wide to be genuine.
“Let’s talk,” she said sweetly. “I’ve been thinking… maybe we should give our family another chance.”
I froze. Her tone was off and calculated. It didn’t take long to understand why. Her new boyfriend had left her, and her business was struggling. She didn’t want me. She wanted the stability I provided.
“I can’t do this,” I said firmly. “You’re welcome to see the kids, but we’re not a family anymore.”
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Her expression changed instantly. The sugary facade melted away, replaced by cold anger.
“If you think you can just refuse me, you’re wrong,” she hissed. “I’ll take the kids. You don’t even have a stable job. The court will rule in my favor.”
Her words weren’t about love or parenting. They were about control. Angela didn’t care about the kids. She just wanted to win.
The stakes were higher than ever, and I couldn’t afford to lose.
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***
The weeks that followed were some of the most stressful of my life. Angela’s legal threats hung over me like a dark cloud, casting a shadow over every moment. I couldn’t sleep without her words echoing in my mind.
“I’ll take the kids. The court will side with me.”
It wasn’t just a threat. It was a battle cry, one I couldn’t afford to ignore.
Jennifer quickly became my lifeline. She was always there, whether it was to listen, offer advice, or bring me coffee when I looked ready to collapse.
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“You’ve been the primary caregiver for years,” she said one evening as we sat in my living room, surrounded by stacks of paperwork. “No court would take the kids away from you. We just need to prove it.”
Her words gave me hope, but I knew hope alone wouldn’t win this fight. Together, we worked tirelessly to gather evidence.
We found photos—birthday parties, preschool events, and everyday moments that showed me at the center of my kids’ lives. Jennifer helped collect testimonials from neighbors, teachers, and even the preschool principal, who agreed to write a letter explaining how involved I was in my children’s lives.
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The day of the court hearing arrived, Angela was already there, dressed in a sleek designer suit. As the hearing began, Angela’s lawyer argued that her financial stability ensured a better future for the children. But when the judge asked about her role in their lives, she faltered, and her polished facade cracked.
Our evidence spoke louder than her words. The ruling came down in my favor. Full custody was mine, while Angela was granted visitation rights.
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Outside, Jennifer was waiting for me. She smiled and hugged me tightly. “I told you we’d figure it out!”
Life didn’t magically return to normal after that. I continued working at the preschool, and with Jennifer’s encouragement, I enrolled in evening courses to become a certified teacher.
As the days turned into weeks, my friendship with Jennifer grew. She became a light in my life, a reminder that even in the darkest times, there was still hope.
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One evening, as we sat in the yard watching kids play, Jennifer turned to me with a smile.
“You know, sometimes life has a funny way of giving you exactly what you need when you least expect it.”
She was right. Angela’s betrayal had broken me, but it also pushed me to discover my strength, my purpose, and something I hadn’t thought I’d find again. Love.
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