Céline Dion Shares Raw Video of Stiff-Person Syndrome Crisis in Never-Seen Footage from New Documentary

In a devastating moment from “I Am: Céline Dion,” the famous person battles through an unexpected and horrifying SPS episode.

Fans are getting an unheard-of glimpse inside Céline Dion’s tribulations during the last few years of her life.

After being diagnosed with stiff-person syndrome in August 2022, the 56-year-old superstar tentatively but proudly returns to the recording studio in a devastating sequence towards the end of her new documentary, I Am: Céline Dion (available for streaming globally on Prime Video).

Shortly after, as part of her continuous treatment regimen, she makes her way to physical therapy and her foot starts to hurt.

Dion’s body locks up, indicating that she is in severe agony while her care team gives her a diazepam nasal spray during the SPS crisis episode. One of her teammates says, “We’ll do a 9-1-1 if she goes back into a spasm.”

In the movie, Dion subsequently remarks, “Every time something like this happens, it makes you feel so embarrassed.” “I’m not sure how to say it. You know that you dislike losing control of yourself?

The five-time Grammy winner thought back on the horrifying moment that director Irene Taylor’s crew captured on camera during her PEOPLE cover interview.

“Overstimulation—whether it be happiness, sadness, sound, or a surprise—can put me into a crisis—that’s one part of the [SPS] condition,” Dion explains, adding that she “did not see” the crisis episode coming that day. “Before something triggered, I was fine.”

Taylor’s understanding of the condition deepened when she was “two feet away” from Dion during the crisis.

Taylor remarks, “That was really amazing, not just for Céline to go through it, but for me to see as well.” “I continued to film because that is how I work, and I thought we would decide later whether or not to incorporate that into the movie.”

Dion and Taylor had developed a close relationship by the time the movie was in post-production, and according to Taylor, “I knew that putting it in the film was really not a risk because she believed in me at that point.” “I really can only thank her for that because she is an open book, was there, and didn’t hold anything back.”

Dion is attempting to humanize the uncommon illness through the movie and contribute to fund-raising efforts for scientific studies in the pursuit of a solution.

Neuropathy has a very broad spectrum. For this reason, I’m making a lot of effort to raise money so that people can speak with their husbands, friends, or neighbors about it,” Dion explains.

Adds Dr. Amanda Piquet, the doctor who diagnosed Dion and director of the University of Colorado Anschutz Medical Campus’s program on autoimmune neurology: “There are many exciting things in store for SPS, and the future looks bright.”

America’s “most inbred family” has apologized after the person who brought their story to light claimed they had been dishonest the entire time.

America’s ‘most inbred family’ have issued an apology to the man who uncovered them.

Photographer Mark Laita discovered the Whittaker family about 20 years ago, but he didn’t start filming their lives right away.

He stayed in contact with them and went back to their home in Odd, West Virginia, to begin filming in 2020.

\The family consists of three siblings named Lorraine, Timmy, and Ray. Their parents were reportedly first cousins.

The family live on a farm in Odd, West Virginia (Soft White Underbelly/YouTube)

After the Whittaker family appeared on Mark Laita’s Soft White Underbelly YouTube channel, they got a lot of attention and were labeled as “the most inbred family” in the U.S.

Although Mark had a good relationship with them, he decided to end it after discovering they had been lying to him.

The family told Mark that 67-year-old Larry Whittaker had died earlier this year. Mark helped them raise money for the funeral and even gave $1,000 of his own money.

However, Larry wasn’t actually dead. When Mark found out, the family apologized for lying, but they went on to deceive him again.

Mark had been told that Larry – pictured – had died (Soft White Underbelly/YouTube)

The photographer, Mark Laita, gave Larry Whittaker $700 to help him take his daughter BJ to North Carolina to start a new life. But Larry didn’t do that and kept the money for himself.

Even though Mark said he wasn’t going to see the Whittakers anymore, he visited them over the summer. He filmed the visit and posted it on YouTube this month. In the video, Larry shakes Mark’s hand and apologizes for everything that happened.

“It’s been a long time,” Larry says to Mark. “I’m sorry for what they did to you, and I want to tell the world that I’m sorry.”

Mark accepts the apology and says he missed them. “I’m very good at forgiving and understanding,” Mark shared. “I’ve missed you guys, and I think my viewers have missed you too.” He even joked that the Whittakers probably missed the money they made from being on his YouTube channel.

Now that they’re on speaking terms again, Mark set up another GoFundMe for the family in late August. So far, the page has raised a little over $600 out of a $100,000 goal. The money will go toward helping the family with living expenses and taking care of their home.

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