The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
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Man transforms recycled containers into a modern, eco-friendly 2-bedroom home with luxury amenities
Living in a sustainable, modern home constructed from recycled containers is an enjoyable and rewarding experience.
Reusing shipping containers not only lessens the impact on the environment but also opens up new possibilities for home design creativity and innovation.
These days, container homes are widespread, but very few are regarded as “luxury.”
A man by the name of Nick constructed an opulent, environmentally friendly house out of marine containers on a plot of land in Index, Washington.
The roughly six-acre plot was bought by Nick and his spouse in 2010.
The original plan was to locate a summertime hideaway where families could get together and enjoy the outdoors for river activities and skiing.
Currently, Nick’s family has six tiny cabins on the land, which they began renting out on Airbnb in 2017.
Nick began work on the environmentally friendly Sea Container Cabin project after finishing the Tree House.
The recycled containers that were utilized were produced in 2007. It has minor dings from when it was used to move cargo.
Nonetheless, Nick thinks that his friends, family, and short-term renters will find it valuable due to its originality and distinction.
There are two 40-foot High Cube containers in the green house.
They were divided in half to create a 40-foot cantilever with around 12 feet on each side and two 20-foot containers on the lower level.
This cantilever, which creates a covered entry, is made possible by the repurposed containers’ strength.
The front locking mechanisms have welded handles for aesthetic appeal, emulating a conventional shipping container.
Nick decided to save the site’s roots by using a segmented foundation in order to protect the trees.
To avoid moisture issues and condensation, they employed spray foam insulation with closed cells.
The frames for the doors and windows were welded around the pre-cut containers.
An unusual rooftop hot tub that heats with gas and solar panels is a distinctive outside feature.
From the shipping of the containers in September to the first visitors being welcomed in March, the full building procedure took about six months.
Nick paid $12,000 for three recycling containers, for a grand total of almost $250,000.
When entering the green house, one is struck by how much it looks like a ski hut, complete with vintage skis thrown in for good measure.
The dining space, living room, and kitchen are all part of the open floor design.
A modern touch is added by an electric fireplace along with inventive lighting options that use LED strips concealed in channels.
The kitchen has recycled Paper Stone countertops and basalt tiles with a Lava Rock theme, all done in dark hues.
A convection microwave oven and a two-burner cooktop make up for the lack of a conventional oven and dishwasher.
As you wash dishes in the kitchen, you can enjoy the breathtaking view of a 110-year-old fir tree.
A mini-split system provides both heating and cooling for the container home.
A powder room with a floor-to-ceiling window, Paper Stone countertops, and a spa toilet are located downstairs.
There is a fire pit area, barbeque area, and covered porch in the backyard.
The unique staircase with LED lights on each step is a noteworthy feature. Everett Steel provided the metal components, which combined to create a robust yet sophisticated design.
There are two bedrooms upstairs, each with a basin for a toothbrush, dimmable mirrors, and environmentally friendly cork flooring.
A short queen bed and a skylight with a view of the woodland are features of the guest bedroom.
The slightly longer master bedroom in the eco-friendly house has the same comfortable bed and a skylight.
The bathroom, which has lava rock floors, a steam shower, and a distinctive Basalt strip, is shared by both bedrooms.
You can turn on the steam for a few minutes before getting in to thoroughly experience the hot tub and steam shower.
Situated 30 minutes from Steven’s Pass, this is a true ski chalet that offers the ideal haven after a tiring day of skiing.
Watch the video below to get a tour of Nick’s environmentally friendly house:
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