The human body’s ability to adapt and overcome challenges is truly remarkable. Tessa Evans, born on Valentine’s Day in 2013, exemplifies this resilience. Diagnosed with Bosma arhinia microphthalmia syndrome—a rare genetic condition—Tessa has not only become a symbol of medical advancement but also a beacon of hope and inspiration.
Understanding a Rare Genetic Condition
Bosma arhinia microphthalmia syndrome affects the development of the nose, eyes, and puberty, and can also influence brain structure. With fewer than 100 documented cases worldwide, the condition is exceptionally rare. First identified in Vietnam in 1981, evidence suggests its existence may date back even further. Tessa Evans is one of the few individuals living with this condition, representing a unique story of courage and progress.
A Trailblazing Journey
Tessa’s parents, Grainne and Nathan Evans from Maghera, Northern Ireland, were unprepared for the diagnosis, as no abnormalities were detected during pregnancy. Despite the shock, the couple embraced their daughter’s uniqueness and embarked on a mission to enhance her quality of life through groundbreaking medical treatments.
Groundbreaking Treatments
At just two weeks old, Tessa underwent her first surgery to receive a tracheostomy tube, enabling her to breathe and eat more easily. By the age of two, she made history as the youngest patient to receive a cosmetic nasal implant. Utilizing advanced technologies such as 3D printing and medical tattooing, doctors are working to create a permanent nasal structure for Tessa as she grows. These innovations are designed to reduce the need for future surgeries and provide her with a more natural profile.
Challenges Beyond Appearance
Living without a sense of smell presents unique safety challenges for Tessa. Without this critical sensory warning system, she is more vulnerable to dangers like fires or spoiled food. Her parents remain vigilant, ensuring her safety and emphasizing the importance of raising awareness about her condition.
Inspiring Change and Progress
Tessa’s courage and her family’s determination have sparked hope for others facing similar diagnoses. Her groundbreaking treatments have inspired another child in the UK to pursue similar procedures. Described as “charming” and “fearlessly courageous,” Tessa continues to challenge perceptions and drive innovation in medical science. Her family’s Facebook page, Tessa; Born Extraordinary, documents her incredible journey, inspiring nearly 10,000 followers.
A Legacy of Resilience
Tessa Evans’ story is one of love, resilience, and medical breakthroughs. Despite the extraordinary challenges posed by her rare condition, she exemplifies what is possible with determination and the support of a dedicated family. Tessa’s journey is not only reshaping lives but also redefining the boundaries of medical science.
Please SHARE this story to inspire others and spread awareness about this extraordinary journey.
Roller Skating and Skate Keys: A Nostalgic Blast from the Past
Roller skating has been a beloved pastime enjoyed by generations of kids and adults alike. It’s hard to believe that the first use of roller skates was in a London stage performance way back in 1743!
John Joseph Merlin, a London resident in 1760, deserves the credit for inventing the first skates. Roller skates have certainly come a long way since then!
In the United States, roller skating gained popularity as a pastime in 1935. But it wasn’t until the introduction of skating rinks playing disco music in the 1970s that roller skating became a huge trend. It seemed like everyone wanted to hit the rinks and groove to the music!
Speaking of roller skating, let’s take a trip down memory lane. Do you remember those heavy metal skates that you could attach to your shoes? They were quite the fashion statement back in the day. But there’s something else that you might remember if you were a skater before the 1970s – the iconic skate key.
This copper-colored object was an essential accessory for anyone with roller skates. At first glance, it may look like a bottle opener or some kind of tool, but it is actually a skate key. With the skate key, you could adjust the size of your skates by fitting it into the back of the pair. And to make sure they didn’t get lost while skating, most people wore the key around their necks. It was a small but significant part of the roller skating experience.
Skate keys were such an integral part of roller skating that there have even been songs written about them! They symbolize a time when roller skating was a cherished activity, filled with fun and memories.
So, do you remember skate keys? We’d love to hear your skating stories on our Facebook page. Let’s share this delightful blast from the past with others who may have fond memories of roller skating and skate keys too!
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