Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
My MIL Left the House Every Thursday & Returned Smelling Terribly — I Went Pale When I Discovered Why
They say you never really know someone until you’ve lived with them. I thought I knew my mother-in-law, but everything changed when I decided to follow her. What I uncovered wasn’t just a secret; it was a ticking time bomb that threatened the peace of our home.
I used to think my life was predictable, with its comforting routine. I worked as a freelance graphic designer, which gave me the flexibility to be home most days while still bringing in a decent income.
A woman working on her laptop from home | Source: Midjourney
Xander, my husband, worked long hours at his law firm, so I often had the house to myself. It was peaceful until my mother-in-law, Cordelia, moved in three months ago.
After her husband passed away, she called us one night, her voice trembling.
“Olive, dear… I don’t know how to do this on my own,” she’d sobbed over the phone. “The house is so empty, so lonely… I just need to be around my family.”
An extremely sad senior woman talking on her phone | Source: Midjourney
I glanced at Xander, and he nodded, looking concerned. We agreed to let Cordelia move in; it felt like the right thing to do for a grieving woman who’d just lost her partner of 40 years. But from the start, something felt off.
Cordelia had always been a little strange, but now her behavior was unpredictable. Every Thursday, she would leave early in the morning and return late in the evening, her clothes carrying a terrible stench: something rotten and damp, like decay. It lingered, clinging to the air and making me question what she was really up to.
A woman looks thoughtful and curious while sitting at home | Source: Midjourney
“Mom, where were you today?” Xander asked her one Thursday evening as she shuffled into the kitchen, her eyes avoiding ours. I stood by the stove, pretending to stir a pot of soup, trying not to wrinkle my nose at the smell.
“Oh, just out with some old friends,” she said, waving a hand dismissively, her smile tight and unconvincing.
A senior woman forces a smile while looking at someone | Source: Midjourney
“Every Thursday?” I asked, keeping my tone casual. “That must be some social circle.”
She glanced at me, her eyes lingering a moment too long, then shrugged. “We like to meet regularly. It’s good for the soul, you know, catching up with old friends.”
But that smell — it was like she’d been crawling through a sewer. The scent lingered long after she’d passed, a pungent blend of garbage and something wet and decayed. I could feel my curiosity gnawing at me, the way you can’t help but poke at a sore tooth.
A curious woman standing in the kitchen and looking at someone | Source: Midjourney
One Wednesday night, I couldn’t take it anymore. “Xander,” I whispered, nudging him awake. “Are you seriously buying that story?”
He blinked sleepily. “What story?”
“Your mom’s ‘out with old friends’ story,” I replied. “Every Thursday? And that smell… it’s not normal.”
He sighed. “Maybe she’s just grieving in her own way, Olive. People cope differently.”
I felt my jaw tighten. “And what way is that? Dumpster diving?”
He chuckled softly, half-asleep, “Let it go, love. It’s probably nothing.”
A man chuckles softly while lying in bed at night | Source: Midjourney
But it didn’t feel like “nothing.” It felt like a secret, and I needed to know.
The next Thursday, I called in sick and decided to follow her. I waited by the window, peeking through the blinds like some kind of amateur detective. Cordelia left the house at her usual time, dressed in her oversized coat, clutching her handbag tightly.
I kept a safe distance as she walked down the street, turning left at the end and then another left into an alley I didn’t even know existed. My heart pounded in my chest as I tailed her.
A woman is out on the street, looking at someone | Source: Midjourney
She stopped at the corner and looked around like she was checking for someone or something.
“Where are you going, Cordelia?” I whispered, more curious than ever.
I was expecting something harmless, maybe even laughable, like an old ladies’ knitting club or maybe a bingo night in a creepy basement. But what I found inside was nothing like that.
Cordelia didn’t meet up with friends. Instead, she made her way through the shadiest part of town, slipping into an old, run-down building that looked like it could collapse at any moment.
A senior woman standing outside an old building | Source: Midjourney
I hesitated outside, the walls covered in graffiti and the windows boarded up, but I took a deep breath and followed her inside. The air was thick with smoke, the kind that sticks to your skin, and the room was filled with the low hum of murmurs and distant laughter.
That’s when I saw it: a hidden, illegal casino tucked away in the back, reeking of stale smoke and the sour smell of desperation. The dimly lit room was filled with flashing lights and the sounds of poker chips clinking filled the air.
Stacks of poker chips on a table | Source: Pexels
And there, in the middle of it all, was my mother-in-law. Not just “hanging out with friends,” but gambling away every penny she could get her hands on, her eyes fixed on the cards in front of her, her hands trembling with each bet she placed.
I stayed in the shadows, barely breathing, watching her play hand after hand. She looked different, haggard, almost like she was wearing the weight of every decision she’d ever made. Her lips were moving, but I couldn’t hear what she was saying over the noise.
A grayscale photo of a senior woman sitting in a casino with gambling chips lying on her table | Source: Midjourney
I saw her lose money, win a little, then lose it all again. She seemed almost possessed, her fingers shaking as she reached for the chips, her face lined with a mixture of desperation and obsession.
I wanted to pull her out of there, to grab her by the arm and drag her home, but I couldn’t move. I felt frozen, glued to the spot. I needed to see how far she would go. She didn’t leave until late in the evening, and when she finally did, she looked exhausted.
A senior woman looks exhausted while sitting in a casino | Source: Midjourney
Her eyes were glazed over, and her shoulders slumped like she was carrying the weight of her losses on her back.
I waited until she turned the corner before I followed, keeping my distance. As we walked back, I felt a wave of anger and pity twisting in my stomach. What had she gotten herself into? And why hadn’t she told us?
The next morning, I couldn’t hold it in any longer. At breakfast, I set my coffee cup down a little too hard. “Cordelia, where were you yesterday?” I asked, my voice sharper than I intended.
A woman looks serious while standing in the kitchen and looking at someone | Source: Midjourney
She barely looked up from her cereal. “With friends, like I told you.”
“Stop lying, Cordelia,” I snapped. “I followed you. I know where you were.”
Her spoon clattered against the bowl, and she went pale. “You… you followed me?”
Xander looked between us, confused. “What’s going on?”
“She wasn’t with friends, Xander,” I said, my gaze fixed on her. “She was at an illegal casino, gambling. And from the looks of it, she’s been doing it for a while.”
A senior woman gambling in a casino | Source: Midjourney
Cordelia’s face crumpled, and she broke down. “I… I’m sorry,” she sobbed. “I’ve lost everything… everything. I had nowhere else to go. That’s why I begged you to let me stay. I was ashamed, and I didn’t know how to tell you…”
Xander’s face turned a deep shade of red. “You mean to tell me you’ve been lying to us this whole time? Using us?”
“I didn’t mean to!” she cried. “I didn’t know how to stop. I thought maybe… maybe I could win it all back.”
A grayscale photo of a senior woman looking sad and desperate | Source: Midjourney
I felt a pang of guilt, but it was overshadowed by the anger boiling inside me. “You’ve been draining us, Cordelia. We took you in because we cared, not so you could feed your addiction.”
She looked at me, her face streaked with tears. “I know, I’m so sorry. I promise I’ll change. Just… don’t throw me out. Please.”
That night, Xander and I lay in bed, unable to sleep. “We have to do something,” I whispered. “We can’t just let her keep doing this.”
Xander sighed deeply. “What do you suggest, Olive? Tough love?”
A man looking at his wife while sitting in bed at night | Source: Midjourney
I nodded. “Exactly. If she’s not going to stop on her own, then we’ll have to make her stop.”
The following Thursday, I handed her a large sum of cash, more than she had seen in one place since she’d moved in with us. Her eyes widened, and for a moment, I saw that familiar spark of greed.
“Go ahead,” I said, forcing a smile. “Take this and do whatever you want with it.”
A woman forcing a smile while looking at someone | Source: Midjourney
She hesitated for just a second before snatching the money and stuffing it into her purse.
“Thank you, Olive,” she murmured, her voice shaking, but she didn’t meet my eyes. And then she was gone, practically running out the door.
Xander stood behind me, his arms crossed. “Are you sure about this?”
“Trust me,” I replied. “She won’t get far.”
Earlier that day, I had made a few calls, and by the time Cordelia reached the casino, the place was swarming with undercover cops. The raid went down right as she was about to hand over the cash.
Two cops standing in a casino | Source: Midjourney
I wasn’t there to see it, but I could imagine the look on her face: shock, maybe a little betrayal, as they caught her red-handed, along with the owners of the illegal casino.
That evening, the phone rang. It was the police. “Mrs. Fields?” the officer said. “We have your mother-in-law in custody.”
“We know,” I replied calmly. “And we’re not bailing her out. You should know she’s been struggling with a gambling addiction. We want her to get help.”
A woman talking on her phone | Source: Midjourney
The officer seemed taken aback but eventually agreed to include our statement in the report. The judge showed no mercy; Cordelia was sentenced to mandatory rehabilitation and a hefty fine.
Months later, when she was released from rehab, Cordelia looked different. She seemed smaller, more fragile. She stood in our doorway, wringing her hands.
“I’m so sorry,” she whispered, her voice raw. “I know I hurt you both, and I’m ready to make it right. I want to rebuild my life.”
A senior woman looks sad and ashamed | Source: Midjourney
Xander and I exchanged a look. He stepped forward, his expression soft but firm.
“We’re willing to give you another chance, Mom,” he said, “but on our terms. We’ve found you a modest apartment nearby. We’ll cover the rent, but only if you keep your word and attend your support group meetings.”
Cordelia nodded eagerly, tears in her eyes. “I will. I swear. Thank you… thank you for giving me a chance.”
As we watched her walk away to her new home, I couldn’t help but feel a flicker of hope mixed with the fear of another betrayal.
A woman looks hopeful and a bit fearful while standing outside her house and looking at something | Source: Midjourney
We’d done all we could, and the rest was up to her. The ball was in her court, and only time would tell if she could truly change.
But when Natasha starts to see a change in Marlene’s behavior, she begins to get worried about the old woman. Eventually, when the truth is revealed, Natasha doesn’t know what to do.
Two women cooking together | Source: Pexels
This work is inspired by real events and people, but it has been fictionalized for creative purposes. Names, characters, and details have been changed to protect privacy and enhance the narrative. Any resemblance to actual persons, living or dead, or actual events is purely coincidental and not intended by the author.
The author and publisher make no claims to the accuracy of events or the portrayal of characters and are not liable for any misinterpretation. This story is provided “as is,” and any opinions expressed are those of the characters and do not reflect the views of the author or publisher.
Leave a Reply