Logan Pacl stands out among teenagers. At 17, he faces a rare illness known as Sanfilippo syndrome. Often called “childhood Alzheimer’s,” this cruel disorder gradually takes away a child’s cognitive skills, mirroring the effects of Alzheimer’s in older people. But he keeps fighting and uses social media to spread awareness about his condition.
At first, everything seemed normal.
Logan Pacl’s life is a battle against time. Diagnosed with Sanfilippo syndrome, often known as “childhood Alzheimer’s,” the 17-year-old from Silverdale faces a relentless genetic disorder that viciously strips away the very essence of childhood. Caused by a single defective gene, this neurodegenerative disease attacks the brain and spinal cord, leaving behind a cruel wake of lost abilities, seizures, and constant pain. It’s a ticking time bomb, as most children with this terminal illness don’t survive beyond their mid-teens.
For Logan’s family, the heartbreak began early. Born in 2007 with his twin brother Austin, Logan seemed like any other healthy baby. Both boys hit their developmental milestones—until Logan began to fall behind. A year in, the red flags emerged: while Austin was speaking, Logan remained silent. The difference between the brothers grew, signaling the start of a devastating journey.
Sanfilippo syndrome doesn’t just rob children of their future—it erases their past.
Then the news of the diagnosis hit the parents, something no one could have anticipated.
As Logan’s condition worsened, with chronic infections and a noticeably swollen belly, Noelle and William were left searching for answers. In January 2010, they learned that Logan had Sanfilippo syndrome, a terminal illness with no cure or treatment, and a life expectancy that typically extends only into the late teens. “I’ll never forget the day we got the phone call. The genetic counselor on the other end went on and on, and all I thought was, well get to the part on how we fix this. Then she said it, ’This disease is terminal, and there is no cure or treatment,’” his parents recall.
Noelle recalled her initial reaction, grappling with the news that the disease was terminal. The weight of the diagnosis was overwhelming, leaving her with a heart that felt as though it had dropped into her stomach. The severity of the situation rendered her unable to process much beyond the devastating reality.
Noelle described the experience of mourning not just the child she had but the life she had envisioned for him, a life that was abruptly stolen away. The medical advice they received was minimal and unhelpful, simply advising them to take Logan home and cherish their time with him. This lack of concrete guidance only deepened their sense of helplessness.
In their search for hope, Noelle and William discovered an experimental stem cell transplant through online research. Inspired by the success of another mother’s child, they decided to pursue the same treatment for Logan. So, Pacl went through a tough three-month treatment that was basically a bone marrow transplant. He had to endure chemotherapy to wipe out his immune system so it could accept the new stem cells. It was a risky procedure, but it seems to have helped with some of Logan’s physical symptoms.
His mother uses social media to spread awareness about his condition.
At 17, Logan’s life is very different from that of most teenagers. Losing his ability to speak at a young age was tough for him and his family, but over time, he’s become more easygoing. “Life with Logan is anything but typical. Each day is a battle to maintain the skills he still has,” his mother Noelle said.
Since 2020, Noelle has been a vocal advocate for Sanfilippo syndrome, using TikTok to share her family’s story. Her videos have reached a global audience, raising awareness about the disorder and encouraging other parents to seek early diagnosis for their children.
Although Logan’s future is uncertain, the Pacl family is committed to making the most of their time together. Noelle and William used to avoid thinking about what lies ahead, but now they focus on cherishing every moment with Logan and ensuring he enjoys his time to the fullest. Noelle notes that among Sanfilippo parents, there’s a bit of a joke that all their children seem like siblings, sharing similar features like bushy eyebrows, a low nasal bridge, and large, round stomachs.
Even with the demands of caring for Logan, Noelle keeps life as normal as possible for Logan’s siblings, Austin and Aidyn. She acknowledges that having a brother with special needs can bring its own set of benefits.
As for sharing Logan’s journey online, Noelle remains thoughtful about what she posts. While she plans to continue sharing, she’s careful to respect her family’s privacy. “We just live in the moment,” his mother said. “And if something comes up, and we’re like, we can make that, we’ll do it.”
People in comments react differently.
Mostly people express support and empathy.
- You take the most wonderful care of him. You are the greatest mom. © lauralang1108 / Instagram
But some show a bit of skepticism.
- Genuine question, what is your plan when you are gone? © devin_abq.505 / Instagram
- I just wanna know why it’s necessary. People have to publicize their children’s conditions. Why do people think that we all wanna know what’s wrong with your child? I feel sorry for the parents, but I don’t know why you want to put this all out there. I’m sure you have support group publicizing putting your child out there like this. © marlawomble / Instagram
Today, conversations about living with disabilities are becoming more open, especially on social media. Celebrities are sharing their experiences as parents of children with special needs, helping to normalize these discussions and inspire others. This shift fosters understanding and empathy, creating a more inclusive environment for everyone.
Our Stepdad Gifted My Mom a Pack of Toilet Paper for Her Birthday — Our Revenge on Him Was Harsh
My stepdad always made a big deal about being the “man of the house,” but when his “special gift” for my mom’s birthday turned out to be a pack of toilet paper, I decided it was time for payback. And let’s just say someone else ended up desperately needing that present.
My stepfather, Jeff, loved reminding us he was the breadwinner of the house throughout our entire childhood. Anytime we sat down to dinner, he’d start with his usual spiel.
A man lauhing at a dinning table | Source: Midjourney
“You’re lucky I keep this roof over your heads,” he’d say and chortle. He also said it all the time while leaning back on his worn-out recliner. It was his favorite thing in the world.
My mom, Jane, always nodded along. She was the kind of woman who avoided conflict at any cost. She wasn’t raised in the 1950s, but her upbringing had been different from ours. Staying quiet had become almost an art form for her.
As her kids, my siblings (Chloe, Lily, and Anthony) and I could see that she desperately wanted to speak up but didn’t. Meanwhile, we surely didn’t consider him “the king of the castle” or a “real man,” which were other phrases Jeff used to describe himself.
A woman at a dinning table | Source: Midjourney
Yes, he paid all the bills while we were growing up, and we were thankful. But that wasn’t an excuse to treat our mother like a servant and think he was better than the rest of us.
We had tried for years to get Mom to leave him to no avail.
Eventually, we all moved out of their house as we reached adulthood, but my sisters and I continued to visit Mom often. Anthony lived on the other side of the country, but he checked in every other day.
A man on the phone | Source: Midjourney
Still, we worried about her.
I felt that our visits weren’t enough to truly know what was going on in that house. I often sat alone in my apartment and wondered if Mom would ever leave this man and if there was something he could do to finally make her snap out of her proverbial shackles.
Yes, this is where it gets good.
This year, Jeff simply went too far. For days leading up to Mom’s birthday, he wouldn’t stop bragging about the “special gift” he’d picked out for her.
A man on a reclining chair | Source: Midjourney
“This one’s going to knock her socks off,” he said over dinner at their house, grinning like a buffoon.
I wanted to believe him. Maybe he had finally decided to treat her with the respect she deserved. But deep down, I knew better. Jeff was Jeff, and people like him never changed.
My mom’s birthday arrived, and of course, my sisters and I were there, sitting in the living room. Jeff had a twinkle in his eyes, and I knew Mom had hope in hers.
Three sisters with presents in their hands | Source: Midjourney
After she opened our presents, my stepdad handed her a huge, beautifully wrapped package. He was smiling, and my mom’s face lit up as she carefully untied the ribbon.
“Oh, Jeff, you didn’t have to,” she said softly.
“Yes, I did. Go on. Open it,” he urged, leaning forward in his chair.
She unwrapped the box slowly, savoring the moment… until she saw what was inside— toilet paper. 12-pack. Four-ply. Jumbo rolls.
A woman smiling with a big present | Source: Midjourney
Mom blinked in confusion.
“It’s so soft. Just like you!” Jeff declared, slapping his knee and cackling. “And look, four-ply, to represent your four kids. Perfect, right?”
Mom let out a nervous laugh, but I could see her eyes glistening. My sisters and I exchanged a look. This wasn’t just a bad joke; it was cruel.
We’d had enough. We had to do something.
A woman looking angry | Source: Midjourney
***
Two days later, our plan began to take shape. Jeff loved two things: being the “big man” and free food. So, we invited him to a “family dinner” at the Chinese restaurant he always raved about.
Chloe, my youngest sibling, was the one who planted the idea.
“We’ll do it in his favorite place. He won’t suspect a thing,” she said, smirking.
Lily, being the eldest and most practical, raised an eyebrow. “And what happens after?”
“Oh, don’t worry,” Chloe replied. “We’ll handle it.”
A woman smiling | Source: Midjourney
We set the date and made sure to hype it up, so Jeff wouldn’t miss it.
“Dinner’s on us this time,” Chloe told him sweetly
Jeff puffed out his chest. “Well, it’s about time someone else paid for once. I’m glad that being out of the house has finally opened your eyes to how great you fared because of me!”
We rolled our eyes internally.
The restaurant was bustling that night. Shiny red lanterns hung from the ceiling, giving the space a nice reddish glow.
Chinese restaurant | Source: Midjourney
The food from other tables smelled delicious, and I could tell Jeff was hungry as we sat down at our table.
“When are your mom and Lily getting here?” he asked, wrinkling his nose toward the front door.
“Don’t worry. They’ll be here soon. How about we order food anyway?” I suggested, nodding towards Chloe.
She agreed and started rattling off things she wanted, things we specifically planned to order: Szechuan beef, Kung Pao chicken, and the spiciest mapo tofu on the menu.
Chinese menu | Source: Midjourney
Jeff ordered his usual, but I knew what we had in mind would still work.
Each dish came out looking like a masterpiece of fiery reds and deep browns, garnished with fresh herbs and enough chili to make a grown man cry.
Chloe’s eyes twinkled as the waiter finished arranging everything on the table.
“Jeff, you can handle spicy, right?” she asked, pretending to be concerned.
A woman smiling at Chinese restaurant | Source: Midjourney
Jeff stayed silent for a second, stumped, then nodded quickly. “I didn’t realize you gals wanted to share everything. Of course, I can eat anything. Nothing is ever too spicy for a real man.”
I chimed in with, “Be careful with these, though. They’re pretty hot.”
I just knew my words would make him mad.
“Don’t be ridiculous, Amelia,” Jeff scoffed and took his chopsticks to skewer a piece of beef straight into his mouth.
A man looking serious at a Chinese restaurant | Source: Midjourney
At first, he gave out an exaggerated moan, to “prove his manliness,” but soon, his face turned redder than the lanterns above us. Sweat beaded on his forehead as he chewed and breathed through his nose.
“Everything alright?” Chloe asked, again faking worry.
“Yes, yes,” he lied through his full mouth. “This is good stuff.”
I was sure Jeff wouldn’t grab more after gulping down an entire glass of Coke, but Chloe and I began eating in earnest.
“Oh, it’s not so spicy after all,” Chloe commented, smiling sugary-sweet. She was baiting him.
A woman smiling with chopsticks in her hand | Source: Midjourney
I nodded, grabbing more.
Not to be outdone, Jeff began to eat more. He was breathing roughly now, but when we asked if he was alright, he simply said, “This really clears the sinuses, gals.”
Still, his fingers went up and snapped at the waiter to bring him more Coke.
Chloe leaned over and whispered, “He’s going to feel that later.”
“Oh, definitely,” I whispered back, grinning conspiratorially.
A woman smiling | Source: Midjourney
***
While Jeff was busy showing off his “macho” tolerance for heat, Mom and Lily were busy back at the house with a rented U-Haul and movers.
They worked quickly to load up Mom’s belongings, such as clothes, keepsakes, her favorite chair, and even the toaster. I told them to take the things Mom had given Jeff over the years by saving up when she could: the recliner and his specialty tools.
A truck and workers loading boxes | Source: Midjourney
But the pièce de résistance was Chloe telling them to remove every single roll of toilet paper in the house.
***
Jeff was still red when we left the restaurant, and he was grumbling about Mom and Lily being no-shows. So I just suggested going to the house to see if anything had happened.
When we arrived, everything was ready. The truck had already left. Meanwhile, Mom and Lily were hiding in the garage.
Jeff walked in with Chloe and me right behind him. He barely made it two steps into the living room before he froze.
A dimly lit living room | Source: Midjourney
“Where’s my recliner?” he barked, scanning the empty spot.
“Gone,” Chloe piped in casually, tilting her head. “Mom took what’s hers.”
Jeff turned to us and his face reddened again, but before he could say another word, his stomach gurgled loudly. He doubled over slightly, clutching his gut.
“Oh, man, I think that spicy food—” He paused, looking around frantically.
A man holding his stomach | Source: Midjourney
“Is something wrong, Jeff? I hope it wasn’t the food,” I said, blinking innocently.
He stared daggers at me before bolting down the hall. Moments later, we heard the bathroom door slam.
Lily and Mom appeared out of their hiding spot right in time to hear the sound of Jeff panicking. “What the hell? Where’s all the toilet paper?!” he yelled.
I couldn’t hold it in anymore.
“We took that along with the recliner!” I shouted, laughter bubbling up. “After all, it also belonged to Mom!”
A woman laughing | Source: Midjourney
“WHAT?” he shouted back.
It seemed like he wasn’t getting it, so Mom stepped closer to the bathroom door. “I’M LEAVING YOU, JEFF! And I took what was mine,” she exclaimed firmly. “Including my dignity.”
Jeff groaned loudly from behind the bathroom door. “You can’t just leave me like this!” he yelled.
“WATCH ME!” Mom replied, adding, “Not that you can right now, but enjoy staying in the bathroom all night!”
A woman next to a closed door | Source: Midjourney
My sisters and I stared at each other, giggling.
Jeff groaned, and there were other unsavory sounds, which I took as our cue to leave. “Let’s go, Mom,” I said.
She nodded and walked out, thanking us.
***
The next day, Jeff tried to call her. Over and over again, he left voicemails full of fake apologies and pitiful excuses.
“Jane, come on, be reasonable! You can’t just run off like this!” he begged.
A man using a phone | Source: Midjourney
But Mom didn’t answer or call back.
Instead, Chloe had a better idea.
On his birthday, we sent Jeff a little gift. A jumbo pack of toilet paper, wrapped just as carefully as the one he’d given Mom.
Attached was a handwritten note that read: “For a real man.”
Rolls of toilet paper on a porch | Source: Midjourney
Mom moved in with Lily, a temporary arrangement where we all helped while she found a job. Anthony was delighted to learn about what we had done and wished he was there, too.
From what I hear, Jeff’s still complaining to anyone who’ll listen. But Mom is finally living her life without his control, and we couldn’t be prouder.
A happy woman | Source: Midjourney
This work is inspired by real events and people, but it has been fictionalized for creative purposes. Names, characters, and details have been changed to protect privacy and enhance the narrative. Any resemblance to actual persons, living or dead, or actual events is purely coincidental and not intended by the author.
The author and publisher make no claims to the accuracy of events or the portrayal of characters and are not liable for any misinterpretation. This story is provided “as is,” and any opinions expressed are those of the characters and do not reflect the views of the author or publisher.
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