Jesús Aceves has hypertrichosis, which makes his hair grow abundantly over his face and back. Because of his condition, he’s also known as The Wolf Man. But he’s tired of this alias and wants to live a normal life.
Meet Jesús Aceves, a 55-year-old man born with a condition called hypertrichosis, which means he has abnormal hair growth over his body, especially his face. Although married with kids, Jesús isn’t fully happy with his living conditions. He says he and his family suffer discrimination. In an interview, one of his kids mentioned, “People call me names, and they even tell their kids not to be my friends.”
He worked in the circus all his life, traveling through several cities. But now, he’s tired of being seen as a freak. As a consequence of years on the road, he’s been known as The Wolf Man.
Back home and not in the circus anymore, he’s facing another challenge: finding a “normal” job. He needs to support his family since his wife works in temporary jobs.
After several failed job interviews, he agreed to try something he had always avoided: shave his face. He relied on his family barber to transform him, even creating eyebrows and lashes.
The experience was difficult since the face is an extremely sensitive body area, but both he and his wife believed that simply by shaving, he would be able to find a job.
Jesús did several interviews, and it’s confident that now he’ll find somewhere to work besides the circus. If this happens, he must shave his face every 2 days.
Although rare, some conditions aren’t impossible to have. Luckily, people find a way to overcome the difficulties a rare condition brings and strive in life. Hannah Tyre, for example, was born with osteogenesis imperfecta, meaning that her bones break very easily. But her love for makeup made her an internet influencer, reaching millions of followers. We hope that, by reaching the mainstream media, people with genetic diseases won’t suffer more discrimination.
Preview photo credit A True Story / Youtube
Mom of rare twins with Down syndrome shuts down critics with photo showing how beautiful they are
Twin pregnancies are still quite uncommon, despite a 72% increase in likelihood between 1980 and 2018. Twins are born in about 33 of every 1,000 births.
What are the probabilities of having identical twins? Out of 1,000 births, three to four are identical twins on average. So once more, not very common.
Savannah Combs, age 23, was overjoyed to learn she was expecting twins. She then discovered that they both have Down syndrome, which is also unusual.
Of course, the information was upsetting. Savannah and her husband Justin Ackerman were aware that due of her illness and the state of her children, some people would judge them.
But Savannah finds that to be the same thing that makes them so beautiful.
“It’s very rare what they have, but they’ve been my little gems,” she mentioned.
Savannah, a Middleburg, Florida native, posted videos of her postpartum journey on TikTok with her kids Kennadi Rue and Mckenli Ackerman, and the videos immediately acquired popularity.
Savannah said in one of her videos that she was advised to abort her children because they wouldn’t survive.
She made the choice to keep them and give them a shot.
”Every [prenatal] appointment they were alive was a blessing to me,” Savannah explained.
Her spouse was gone at boot camp when she found out they both had Down syndrome.
When Savannah was admitted to the hospital, she was 29 weeks along with her pregnancy and gave birth to twin daughters. Kennadi Rue and Mckenli Ackerman, identical twin daughters, were born on May 12, 2021.
The twins had to spend a few weeks in the NICU before going home because they were born two months early.
“They’re called mono di twins, meaning that they had their own sacs, but they shared the same placenta, meaning that they were going to be identical,” she said.
“Mo di twins as it is, it’s like very rare. And then you throw Down syndrome on top of it, it’s like one in 2 million.”
They are just like any other youngster, according to Savannah, despite having an uncommon disease.
“They have feelings. They have a beating heart. They know how to talk. They know how to do things you do. They will get there,” she said.
“Like I said, it may be a step behind but they’re going to do it. I’ve learned these kids are feisty little things and happy little things.”Savannah posts wonderful updates on TikTok as each youngster continues to reach their milestones.
“I’m going to let them know that they’re just like us and they’re going to get there as long as they put their minds to it.”
Nevertheless, some people feel compelled to be critical of Savannah and her family. The young mother was forced to respond to some extremely cruel people on social media as a result.
”I wouldn’t want those babies; if mine came out like that, they would be straight up for adoption,” one person wrote to the mother.
Savannah, though, had the ideal response, which she posted on Facebook.
“I said, good thing they weren’t born to you and were born to me. God knew what he was doing by giving these babies to the right parents who would love them regardless.”
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