When Emiliana Rodriguez was a little girl, she recalls watching friends play a nighttime soccer match when one of the players abruptly died on the pitch.
Unaware of what had transpired, Rodriguez, a native of Bolivia, developed a phobia of the dark and the “monster”—the silent killer known as Chagas—that she had been told only appears at night.
Chagas disease is a unique sort of illness that is spread by nocturnal insects. It is also known as the “silent and silenced disease” that infects up to 8 million people annually, killing 12,000 people on average.
Emiliana Rodriguez, 42, discovered she had to live with Chagas, a “monster,” after relocating to Barcelona from Bolivia 27 years ago.
“Night is when the fear generally struck. I didn’t always sleep well,” she admitted. “I was worried that I wouldn’t wake up from my sleep.”
Rodriguez had specific tests when she was eight years old and expecting her first child, and the results indicated that she carried the Chagas gene. She recalled the passing of her buddy and remarked, “I was paralyzed with shock and remembered all those stories my relatives told me about people suddenly dying.” “I wondered, ‘What will happen to my baby?’”
Rodriguez was prescribed medicine, though, to prevent the parasite from vertically transmitting to her unborn child. After her daughter was born, she tested negative. Elvira Idalia Hernández Cuevas, 18, was unaware of the Mexican silent killer until her 18-year-old son was diagnosed with Chagas.
Idalia, an eighteen-year-old blood donor from her birthplace near Veracruz, Mexico, had a positive diagnosis for Chagas, a disease caused by triatomine bugs, often known as vampire or kissing bugs and bloodsucking parasites, when her sample was tested.
In an interview with the Guardian, Hernandez stated, “I started to research Chagas on the internet because I had never heard of it.” When I read that it was a silent murderer, I became really afraid. I had no idea where to go or what to do.
She is not alone in this; a lot of people are ignorant of the diseases that these unpleasant bugs can spread. The term Chagas originates from Carlos Ribeiro Justiniano Chagas, a Brazilian physician and researcher who made the discovery of the human case in 1909.
Over the past few decades, reports of the incidence of Chagas disease have been made in Europe, Japan, Australia, Latin America, and North America.
Kissing bugs are mostly found in rural or suburban low-income housing walls, where they are most active at night when humans are asleep. The insect bites an animal or person, then excretes on the skin of the victim. The victim may inadvertently scratch the area and sever the skin, or they may spread the excrement into their mouth or eyes. This is how the T. cruzi infection is disseminated.
The World Health Organization (WHO) estimates that between 6 and 7 million people worldwide—roughly 8 million people in Mexico, Central America, and South America—have Chagas disease; the majority of these individuals remain oblivious to their illness. These estimates are provided by the Centers for Disease Control and Prevention (CDC). The persistent infection might be fatal if untreated. According to the Guardian, Chagas disease kills over 12,000 people year, “more people in Latin America than any other parasite disease, including malaria.”
Despite the fact that these bugs have been found in the United States—nearly 300,000 people are infected—they are not thought to be endemic.
While some people never experience any symptoms, the CDC notes that 20 to 30 percent experience gastrointestinal or heart problems that can cause excruciating pain decades later.
Furthermore, only 10% of cases are detected globally, which makes prevention and treatment exceedingly challenging.
Hernández and her daughter Idalia went to see a number of doctors in search of assistance, but all were also uninformed about Chagas disease and its management. “I was taken aback, terrified, and depressed because I believed my kid was going to pass away. Above all, Hernandez stated, “I was more anxious because I was unable to locate any trustworthy information.”
Idalia finally got the care she required after receiving assistance from a family member who was employed in the medical field.
“The Mexican government claims that the Chagas disease is under control and that not many people are affected, but that is untrue,” Hernández asserts. Medical practitioners misdiagnose Chagas disease for other heart conditions because they lack knowledge in this area. Most people are unaware that there is Chagas in Mexico.
The World Health Organization (WHO) has classified chagas as a neglected tropical disease, which means that the global health policy agenda does not include it.
Chagas is overlooked in part because, according to Colin Forsyth, a research manager at the Drugs for Neglected Diseases Initiative (DNDi), “it’s a silent disease that stays hidden for so long in your body… because of the asymptomatic nature of the initial part of the infection.”
Forsyth went on to say, “The people affected just don’t have the power to influence healthcare policy,” making reference to the impoverished communities. It’s kept hidden by a convergence of social and biological factors.
Chagas, however, is becoming more well recognized as it spreads to other continents and can also be transferred from mother to child during pregnancy or childbirth, as well as through organ and blood transfusions.
The main objective of the Chagas Hub, a UK-based facility founded by Professor David Moore, a doctor at the Hospital for Tropical Diseases in London, is to get “more people tested and treated, and to manage the risk of transmission, which in the UK is from mother to child,” according to Professor Moore.
Regarding the WHO’s 2030 aim for the eradication of the disease, Moore stated that progress toward it is “glacial” and added, “I can’t imagine that we’ll be remotely close by 2030.” That seems improbable.
Two medications that have been available for more than 50 years to treat chagas are benznidazole and nifurtimox, which according to Moore are “toxic, unpleasant, not particularly effective.”
Although the medications are effective in curing babies, there is no guarantee that they will prevent or halt the advancement of the condition in adults.
Regarding severe adverse effects, Rodriguez remembers getting dizziness and nausea as well as breaking out in hives. She completed her therapy, and she gets checked out annually.
Moore goes on to say that while creating stronger anti-Chaga drugs is crucial to stopping the disease’s spread, pharmaceutical companies are currently not financially motivated to do so.
As president of the International Federation of Associations of People Affected by Chagas condition (FINDECHAGAS), Hernández is on a mission to raise awareness of the condition until there is a greater need on the market for innovative treatments.
In Spain, Rodriguez is battling the “monster” as part of a campaign to increase public awareness of Chagas disease being conducted by the Barcelona Institute for Global Health.
“I’m tired of hearing nothing at all,” Rodriguez declares. “I want Chagas to be discussed and made public. I’m in favor of testing and therapy for individuals.
They are being heard, too.
World Chagas Disease Day was instituted by the WHO on April 14, 1909, the day Carlos discovered the disease’s first human case.The WHO states that “a diversified set of 20 diseases and disease categories are set out to be prevented, controlled, eliminated, and eradicated through global targets for 2030 and milestones.” And among them is Chagas.
To prevent a possible infestation, the CDC suggests taking the following steps:
Close up any gaps and fissures around doors, windows, walls, and roofs.
Clear out the rock, wood, and brush piles close to your home.
Put screens on windows and doors, and fix any tears or holes in them.
Close up gaps and crevices that lead to the exterior, crawl areas beneath the home, and the attic.
Keep pets inside, especially during the evening.
Maintain the cleanliness of your home and any outdoor pet resting places, and check for bugs on a regular basis.
If you believe you have discovered a kissing insect, the CDC recommends avoiding crushing it. Alternatively, carefully put the bug in a jar, fill it with rubbing alcohol, and then freeze it. It is then recommended that you bring the bug’s container to an academic lab or your local health authority so that it can be identified.
Please tell this tale to help spread the word about an illness that goes unnoticed!
Christopher Reeve’s son lost both his parents by age 13
Numerous accounts exist of children who have grown up to resemble their famous parents.
A number of famous children make us gasp in disbelief when we look at them, including the twin daughters of Michael J. Fox, the teenage daughter of Julia Roberts who looks just like her, and even the grandson of Elvis Presley.
Will, the 29-year-old son of Christopher Reeve, is striving to carry on his father’s inspirational legacy in addition to being a near-perfect replica of his father.
Sadly, at the age of thirteen, Christopher Reeve’s youngest son had to cope with the loss of both of his parents.
A scene from the 1978 movie “Superman,” starring Christopher Reeve as Superman. (Photo via Getty Images))
How does a hero appear?
Growing up in the late 1970s and early 1980s, Christopher Reeve was a hero to millions of people.
When the DC comic book character Superman first appeared on television in 1978, he won a BAFTA for Most Promising Male Newcomer.
Superman II, Superman III, and Superman IV: The Quest for Peace are the three further superhero films in which the endearing and attractive actor starred.
We will always remember the well-known superhero that goes by his name.
But in addition to being an actor, Christopher Reeve (born in New York in 1952) was also a screenwriter, producer, director of films, campaigner, and horseback rider.
Accident involving Christopher Reeve
Christopher Reeve’s life would forever alter on May 27, 1995.
The well-liked actor suffered a spinal cord injury after falling off his horse Buck at an equestrian competition in Culpeper, Virginia.
The Hollywood actor became wheelchair-bound and paralyzed from the neck down, shocking millions of fans and his family.
Christopher’s mother pleaded with the medical staff to discontinue his mechanical ventilation and allow him pass away, according to the actor’s foundation.
The actor would have died instantly if he had fallen one centimeter farther to the left, according to information subsequently disclosed by the New York Times. In contrast, Christopher would have most likely only sustained a concussion if he had landed slightly to the right.
Christopher became quadriplegic while he was just 42 years old. For the remainder of his life, he needed a portable ventilator and was confined to a wheelchair.
Physicians promptly announced that there was little chance of recovery, telling Reeve in particular that it would be “impossible” for him to regain any movement.
In the early days of his hospital stay, Christopher Reeve was incoherent and highly drugged. He was going through hell. He believed his life had been ruined after learning the terrible diagnosis from the doctor.
In an attempt to spare his family from further hardship, he suggested to his wife Dana Morosini that they might as well end the relationship.
“I will support whatever you want to do because this is your life and your decision,” she said, her eyes welling with sorrow. But I want you to know that no matter what, I’ll be by your side for the entire journey. You remain who you are. I also adore you.
Reeve had the option to give up, but he chose to dedicate himself to activism and founded the Christopher Reeve Foundation with his loving wife Dana. Later on, the Christopher & Dana Reeve Foundation became its new name.
Additionally, the pair co-founded the Reeve-Irvine Research Center, which advocates for stem cell research and patients of spinal cord injuries.
To ensure his son had a happy childhood, Christopher Reeve also made the decision to do everything in his power.
In a 2016 interview with PEOPLE, Will talked candidly about his incredible upbringing, which he described as “completely typical.”
Will recalled them with affection, saying, “They were the ones who told me to go to bed, eat my broccoli, and turn off the TV.” “It was a totally normal childhood, but I understand that not every child experiences seeing their dad on the magazine at the checkout aisle when they go to the grocery store.”
Will also recalled the day his father showed him how to use a wheelchair to ride a bike. “I didn’t think it would succeed. “I’m scared, but I can hear my dad saying, ‘Steady, steady, left, right, left, right,’” he remarked. “By the third lap, I’m grinning and waving at my dad, and he’s grinning, too.” That had great meaning for him. I would race in a wheelchair later on. He would permit me to triumph.
Regretfully, just as they were reassembling everything, Will’s father passed away.
Death of Christopher Reeve
Christopher Reeve has numerous health issues even as a small child. His breathing was hampered by allergies and asthma.
He also discovered at the age of sixteen that he had alopecia areata, which was the reason of his hair loss. During his acting career, Christopher managed to manage the condition; nevertheless, upon becoming disabled, he made the decision to completely cut off all of his hair.
Christopher had multiple infections treated in the early 2000s. He was receiving treatment for an infected pressure ulcer that was resulting in sepsis in October 2004. While he was watching his son Will play hockey on October 9, Christopher had a heart attack that same evening as a result of receiving medication for his sickness.
The physicians were at a loss for what to do once he went into a coma.
At 52 years old, Christopher Reeve passed away on October 10, 2004.
Reeve’s death was attributed to a medication response, according to both Mrs. Dana and the doctors.
At Hartsdale, New York’s Ferncliff Cemetery, his corpse was cremated, and his ashes were dispersed.
Death of the wife
Despite never having smoked, Dana, Christopher’s spouse and caretaker, was also diagnosed with lung cancer only ten months after her husband’s passing. But in the early years of her career, Dana used to sing and perform in smokey pubs and hotel lobbies, claims Christopher P. Andersen.
On April 11, 1992, American singer and actress Dana wed actor Christopher Reeve in Williamstown, Massachusetts.
Dana, 44, passed away on March 6, 2006, following several months of fighting a malignant lung malignancy.
Willard Reeve
William Elliot “Will” Reeve, the son of Christopher and Dana, was born on June 7, 1992. Regretfully, Will was abandoned as an orphan when he was just 13 years old.
Nevertheless, Will has grown up to resemble his father, even though he has mostly avoided the spotlight up to this point.
After completing his schooling, Will is pursuing a successful career in the sports press profession.
Will, who is now 29 years old and has been handsomely bequeathed by his father, looks just like him more than ten years later.
However, what really stands out about this young man is that he is carrying on the excellent work that his parents began.
Despite the possibility of a downward spiral or mental instability following such a traumatic experience at such a young age, Will was able to avoid going down this path because of his strong moral principles and the support of his parents.
“A hero is an ordinary individual who finds the strength to persevere and endure in spite of overwhelming obstacles,” my father once said. I use this quote often to honor his legacy and instill his timeless spirit in a new generation,” he added in a Daily Mail article.
Will told his parents he would succeed in his career and now contributes to ESPN’s SportsCenter. He and his father both enjoy sports.
After serving as a production assistant and intern at “Good Morning America” while attending Middlebury College, he was hired.
He carries on the job his parents began, searching for novel treatments and spearheading the foundation’s fundraising efforts for additional technological advancements that will benefit individuals with spinal injuries.
In an interview with CBS News in 2018, Will discussed a letter he had written to himself following the death of his parents.
“I have both bad and good news to share. I’ll start with the negative because, no matter what, you always need to be aware of the full picture. And no, it won’t change. You’re at the lowest moment in your life, which is the bad news. You’ve just said your last goodbye to Mom and you’re in a hospital room in New York City,” he wrote. “You’re thirteen years old.” She is forty-four. carcinoma of the lung. Never indulged in smoking. Gone, like Dad, who passed away a year and a half ago, when you were at your lowest point. You’ve reached a new low, where you feel scared, perplexed, and incredibly depressed. However! The good news is that this is the bottom. You’re heading straight up, which is the only direction there is.
How motivating is Will Reeve, a young man?
Even though he lost both of his parents when he was quite young, he honors their memories every day with his accomplishments and attitude.
I’m sure his parents were quite proud of the progress this young man has made. He truly is an inspiration.
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