Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.

Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.

The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.

Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.

Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.

“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.

Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.

Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.

But despite her suffering, she remains upbeat and happy and has even found love.

She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.

He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.

”He came and he showed me that I could live a true love story”, she says.

But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.

”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.

Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.

”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.

A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:

”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.

“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to realize the importance of being positive.

”Be happy, smile, because life happens only once,” she said.

In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

My Stepdaughters Made My Daughter Sleep on the Floor After Her Mom Died – Shocked, I Stepped in Immediately

When my grieving daughter called, sobbing that her stepsisters made her sleep on the floor the night of her mother’s funeral, my heart broke. With no support from my wife, I took matters into my own hands.

Blending families was never easy. After eight years of marriage to Candace, I thought we’d figured it out.

A happy family with kids | Source: Pexels

A happy family with kids | Source: Pexels

My daughter, Shiloh, is 16. She’s quiet and thoughtful, always preferring a book or a sketchpad to the chaos of her stepsisters, Anna, 19, and Sophie, 17.

Anna and Sophie, on the other hand, are the life of the party. Over the years, I’ve watched Shiloh try to fit in, but she’s always been the outsider.

A sas girl in her bedroom | Source: Pexels

A sas girl in her bedroom | Source: Pexels

Candace assured me it was normal sibling dynamics, but there were moments that felt like more than that. I’d catch Shiloh retreating to her room with her lips pressed together in that tight way she has when she’s holding back tears after a comment from Anna or Sophie.

Then, last week, the unthinkable happened.

A crying girl covering her face with her hands | Source: Midjourney

A crying girl covering her face with her hands | Source: Midjourney

Shiloh’s mother, my ex-wife, passed away unexpectedly. I was away on a business trip, and the call left me stunned. My mind raced through disbelief, grief, and worry for my daughter. She was incredibly close to her mom. This would shatter her.

I left immediately, driving through the night to get to her. Candace offered to take the girls ahead, and while I was grateful, something about the hotel arrangements left me uneasy.

A thoughtful man outside | Source: Pexels

A thoughtful man outside | Source: Pexels

Two rooms — one for Candace and me and one for the girls. “It’ll keep the peace,” Candace had said, brushing off my concerns. I trusted her to handle it, but a knot of doubt had settled in my chest.

I was halfway through my drive when my phone buzzed. It was Shiloh.

“Hey, sweetheart,” I said, my voice soft.

A man looking at his phone while driving | Source: Midjourney

A man looking at his phone while driving | Source: Midjourney

She didn’t answer right away. When she finally spoke, her voice was small and shaky. “Dad… I’m sleeping on the floor.”

I blinked, gripping the steering wheel tighter. “What? Why?”

“Anna and Sophie said the bed’s too small for three people,” she mumbled. “They told me it’d be better if I slept on the floor.”

A crying girl sitting on the floor | Source: Pexels

A crying girl sitting on the floor | Source: Pexels

I felt my jaw tighten. “Did you tell Candace?”

“She said it’s just for one night and to let it go,” Shiloh said, her voice cracking. “It’s fine, Dad. I didn’t want to make a big deal.”

I could hear the tears in her voice, and it broke something inside me. “No, honey,” I said, my voice firm. “It’s not fine. You shouldn’t have to do this.”

A shocked man in his car | Source: Midjourney

A shocked man in his car | Source: Midjourney

I pulled the car onto the shoulder of the road and ran a hand through my hair, trying to calm the anger that was building.

“Listen to me,” I said. “You’ve done nothing wrong, okay? This isn’t about making a big deal — it’s about what’s fair. You don’t deserve this, especially not now.”

Her sniffles on the other end of the line made my chest tighten.

A crying young woman | Source: Pexels

A crying young woman | Source: Pexels

“Dad,” she said quietly, “it’s okay. I don’t want to fight with them.”

“Sweetheart,” I said, forcing my voice to stay calm, “you just lost your mom. The last thing you need is to feel like this.”

When I hung up, I didn’t hesitate. I called Candace immediately. She picked up quickly, her tone light.

“Hi, honey! Still on the road?”

A woman on her phone | Source: Pexels

A woman on her phone | Source: Pexels

“What’s going on over there, Candace?” I said, skipping any pleasantries.

There was a pause. “What do you mean?”

“Shiloh just called me. She’s crying because Anna and Sophie made her sleep on the floor. Why didn’t you step in?”

Candace sighed. “The girls said the bed was too cramped. It’s just one night, Robert. She’ll be fine.”

An annoyed woman talking on her phone | Source: Midjourney

An annoyed woman talking on her phone | Source: Midjourney

“She’s not fine,” I snapped. “She’s grieving, Candace. And now she’s being pushed onto the floor like she doesn’t matter?”

“She’s not being pushed!” Candace shot back. “They’re just trying to be comfortable. I don’t see the problem here.”

“The problem,” I said, my voice rising, “is that Shiloh is there all by herself, and instead of supporting her, you’re letting her feel like an outsider. How can you be okay with this?”

An angry man talking on his phone | Source: Midjourney

An angry man talking on his phone | Source: Midjourney

Candace’s tone grew sharper. “What do you expect me to do, Robert? Force Anna and Sophie onto the floor? They’re kids too! This isn’t easy for them either.”

“They didn’t just lose a parent!” I snapped. “Shiloh is trying to hold herself together, and instead of making things easier for her, you’re brushing it off like it’s nothing!”

Candace let out a frustrated sigh. “You’re blowing this out of proportion. It’s one night. Shiloh can handle it.”

A frustrated woman talking on her phone | Source: Midjourney

A frustrated woman talking on her phone | Source: Midjourney

I felt a bitter laugh escape my throat. “This isn’t about handling anything. It’s about showing her that she’s not alone. How do you not see how important this is?”

I was still hours away when my phone buzzed again. Candace’s name lit up the screen, and I braced myself as I answered.

“What did you do, Robert?” she demanded, her voice low but furious.

An angry woman talking on her phone | Source: Midjourney

An angry woman talking on her phone | Source: Midjourney

“What I had to,” I said flatly, gripping the wheel. “Shiloh called me crying because Anna and Sophie made her sleep on the floor. You brushed her off, so I called the hotel manager, booked her another room, and asked them to escort her there.”

“You booked her a private room?” she snapped. “Without even talking to me?”

A smiling man talking on his phone | Source: Midjourney

A smiling man talking on his phone | Source: Midjourney

“I didn’t have time to talk, Candace,” I said, my voice tightening. “You made excuses instead of standing up for my daughter. I had to act.”

“She could have handled one night, Robert!” Candace said, her tone sharp. “Do you realize what you’ve done? Anna and Sophie are furious. They think you’re playing favorites.”

An angry woman talking on her phone in a hotel room | Source: Midjourney

An angry woman talking on her phone in a hotel room | Source: Midjourney

“Playing favorites?” I repeated, anger flaring. “This isn’t about favorites. Shiloh is living through possibly the worst moment of her life, Candace. She doesn’t need a lesson in ‘toughing it out’ right now. She needs support.”

“You’re undermining me,” she shot back. “Do you know how this looks? I’m supposed to be in charge while you’re away, and you went behind my back to fix something that wasn’t even that big of a deal!”

An angry man talking on his phone in his car | Source: Midjourney

An angry man talking on his phone in his car | Source: Midjourney

“It was a big deal,” I countered. “Shiloh deserved better, and no one stood up for her — not even you. How do you think that makes her feel?”

When I arrived at the hotel early the next morning, the tension was already simmering. I walked into the lobby and called Candace to let her know I was there.

“She’s in her new room,” Candace said curtly. “Anna and Sophie are upset, and I don’t know how you’re planning to fix this.”

A couple having a serious talk in a hotel room | Source: Midjourney

A couple having a serious talk in a hotel room | Source: Midjourney

“Candace, this isn’t about fixing their feelings,” I said. “It’s about doing the right thing.”

The heated argument continued after I left the funeral preparations that morning.

“Anna and Sophie won’t even look at you,” Candace said. “They feel like you’ve chosen Shiloh over them. This could ruin everything we’ve built.”

“Built?” I said, incredulous. “Candace, if what we’ve built can’t survive me standing up for my grieving daughter, maybe it wasn’t as strong as you think.”

An angry man talking in a hotel room | Source: Midjourney

An angry man talking in a hotel room | Source: Midjourney

“That’s unfair,” she said quietly, but her voice lacked conviction.

“What’s unfair is how you let her be treated,” I said, my frustration boiling over. “She’s a kid who just lost her mom, Candace. I expected you to show some compassion. Instead, you treated her like an inconvenience.”

“I care about Shiloh,” she insisted.

An offended woman with her arms crossed | Source: Freepik

An offended woman with her arms crossed | Source: Freepik

“Then why didn’t you act like it?” I asked, my voice softening but still firm.

At the funeral, I stayed close to Shiloh. She clung to my arm, her head bowed low, her face pale with grief. The service was heartbreaking, but I couldn’t take my eyes off her.

Her hands trembled as she wiped at her tears, and my heart ached watching her hold it all in. When the service ended, she turned to me and whispered, “Thank you for everything, Dad.”

A black and white photo of a crying girl | Source: Pexels

A black and white photo of a crying girl | Source: Pexels

Her words were simple, but they meant everything.

Once we were back home, I sat Candace down for a serious conversation.

“We need to talk,” I said.

“Robert, I’m tired of rehashing this,” she replied, crossing her arms.

An angry woman sitting on the couch | Source: Midjourney

An angry woman sitting on the couch | Source: Midjourney

“Candace, this isn’t about arguing,” I said firmly. “It’s about making sure this never happens again. Shiloh needs us — needs you — to be better. She’s already lost her mother. She shouldn’t feel like she’s losing her place in this family too.”

Candace sighed, looking away. “I didn’t handle it right,” she admitted quietly. “But you made me feel like I don’t have a say.”

A serious man in his living room | Source: Midjourney

A serious man in his living room | Source: Midjourney

“You always have a say,” I replied gently. “But when it comes to Shiloh, I won’t compromise on making sure she feels loved and safe. I hope you can understand that.”

Candace nodded reluctantly. “I’ll try to do better,” she said, though her tone held a trace of resentment.

Later that evening, Shiloh hugged me tightly. “Thank you for standing up for me, Dad,” she whispered.

A father hugging his daughter | Source: Midjourney

A father hugging his daughter | Source: Midjourney

I held her close, realizing that I’d made the right choice. From now on, I resolved to set clearer boundaries, ensuring that Shiloh always felt supported, no matter what it cost me.

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