Woman with rare skin condition overcomes negativity and finds true love

Thanks to the rise of social media, we’re all bombarded with images of seemingly perfect-looking people; it seems as though the world has become even more shallow in how people are judged.

For those of us that don’t fit the stereotypical “perfect” mold, the world can seem very cruel, with complete strangers feeling it necessary to criticize someone based on their appearance on social media.

Karine de Souza knows this more than anyone. The Brazilian has spent her life covering her skin in SPF100 sunscreens – even when she’s inside her home – due to her rare skin condition.

The 33-year-old was diagnosed with Xeroderma Pigmentosum when she was three years old which means she is at high risk of skin cancer.

Her ”one-in-a-million” condition, which is incurable, means she is highly sensitive to UV rays as she lacks the ability to repair any damage the sun causes to her skin.

Just a few minutes in the sun can mean incredibly painful sunburn for her. Growing up, she was often isolated from the outside world because it was too dangerous for her to spend too much time outside her house.

“When I expose myself to the sun it doesn’t happen in the moment, I don’t feel anything. However, in the future, the lesions appear and need to be removed because of cancer,” she said.

Karine has had to endure 130 surgical procedures to remove lesions caused by the sun, including the removal of her lower lip and part of her nose.

Sadly, it is not only a physical battle she has to endure. Karine often gets stared at in the street and has been the victim of verbal abuse both within her community and online.

But despite her suffering, she remains upbeat and happy and has even found love.

She met her husband Edmilson through social media, who fell in love with her “story and her strength.” Edmilson has always stood by Karine’s side, and he knew he wanted to spend the rest of his life with her.

He also decided to embrace Karine’s three children from her previous relationship, which of course, meant a lot to Karine.

”He came and he showed me that I could live a true love story”, she says.

But after posting photos of them together online, Karine was once again exposed to a whole host of offensive comments.

”We have already read many offensive comments calling me a monster, deformed, a zombie,” Karine said.

Other comments suggested that their relationship wasn’t genuine and that Karine was a ”sugar mommy,” and that she must be very rich.

”Because of the fact he’s a young man and pretty, that caught people’s attention and they didn’t believe that he was with me because he really liked me,” Karine said.

A photographer who captured the couple after they got engaged posted a selection of the images online and wrote:

”In a world where appearance matters more than the feeling, they met not by chance, but by a gathering of souls, an encounter of acceptance and character and love emerged when their souls met and today you are the inspiration to so many people who do not believe in themselves, in life and especially in love.

“THANK YOU every day for being who you are. STOP complaining for being like you are. HUG LIFE, and accept yourself. Much gratitude for teaching me so much. You guys are AMAZING. You are the missing hope in so many people. Thank you for the big hug, and for the wonderful day we experienced together. I carry your smile with me forever.”

His heartfelt words and beautiful images he captured of Karine and Edmilson went viral, and thousands of people commented, congratulating the couple.

Karine wants others to realize the importance of being positive.

”Be happy, smile, because life happens only once,” she said.

In 2023, Karine and Edmílson welcomed a baby girl into the world, and they couldn’t be happier! Their daughter, Zaia, was long awaited – Karine and her husband had been trying for a baby since 2020.

Karine has been through so much but thanks to her positive attitude she has found the happiness she deserves.

Her story is inspirational so help us inspire others in similar situations by sharing this story with your friends and family.

MY LATE PARTNER’S PARENTS SUDDENLY APPEARED & DEMANDED I GIVE THEM THE KEYS TO HIS HOUSE – I AGREED UNDER ONE CONDITION.

The air in the living room was thick with tension. Jason’s parents, his father, a man whose face I hadn’t seen since Jason was a teenager, and his mother, a woman whose icy glare could curdle milk, sat opposite me, their faces a mask of greed and indignation.

“He did leave you an inheritance,” I said, my voice calm despite the tremor running through me. I reached into my bag and pulled out a sealed envelope. “He wanted you to have it.”

Their eyes widened. They practically lunged for the envelope, their fingers trembling with anticipation. I watched as they tore it open, their faces contorting with a mixture of confusion and disappointment.

The envelope contained a single sheet of paper, a handwritten letter from Jason.

“Dear Mom and Dad,” the letter began, “If you’re reading this, it means I’m no longer with you. I know we haven’t always seen eye to eye, but I want you to know that I forgive you. I also want to express my gratitude to Sarah for the unwavering support she has given me throughout my illness. She was my rock, my confidante, my love.

“I know you might expect me to leave the house to you, but I believe Sarah deserves it. She helped me pay the mortgage for years, she cared for me when I was sick, and she was always there for me, even when you weren’t.

“I hope one day you can understand my decision.

With love, Jason”

The room fell silent. Jason’s father, his face contorted with rage, crumpled the letter and threw it on the floor. “This is an insult! He should have left the house to us! We are his family!”

His mother echoed his sentiments, her voice shrill with indignation. “He was under her spell! She manipulated him! He wouldn’t have done this if he was thinking clearly.”

I remained silent, watching them with a mixture of pity and satisfaction. Their greed was palpable, their love for their son a distant memory, overshadowed by the allure of material possessions.

“I understand your disappointment,” I said calmly, “but Jason’s wishes are clear. The house is mine.”

Jason’s father exploded. “You’re nothing but a gold digger! You only married him for his money!”

I rose to my feet, my anger finally erupting. “I married Jason because I loved him, not for his money. I was there for him when you weren’t. I supported him through thick and thin. I loved him unconditionally, even when his own family abandoned him.”

Jason’s mother scoffed. “Love? You loved his money, that’s all.”

I turned to leave, my head held high. “I will not tolerate these accusations,” I said, my voice firm. “Jason loved me, and I loved him. And I will honor his wishes.”

As I walked away, I felt a sense of peace I hadn’t experienced in years. I had finally stood up for myself, for my love for Jason, and for the life we had built together. The house, a symbol of their greed and his love, would remain a testament to their lost opportunity and to the enduring strength of true love.

I knew the battle wasn’t over. They would likely try to contest the will, to find loopholes, to exploit any weakness they could find. But I was prepared. I had a good lawyer, and I had the truth on my side.

More importantly, I had Jason’s love, a love that transcended material possessions, a love that had proven to be stronger than any family feud, any petty greed. And that, I knew, was a legacy far more valuable than any house.

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